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结直肠癌患者更喜欢哪种同伴支持模式?

What models of peer support do people with colorectal cancer prefer?

机构信息

Patient Studies, Centre for Behavioural Research in Cancer, Cancer Council Victoria, Carlton, Vic., Australia.

出版信息

Eur J Cancer Care (Engl). 2011 Jul;20(4):455-65. doi: 10.1111/j.1365-2354.2010.01218.x. Epub 2010 Aug 26.

Abstract

While colorectal cancer is the most common cancer affecting both men and women in Australia, disease-specific peer support services are lacking. This study examined the acceptability and preferred models of peer support among people with colorectal cancer. First, a mixed-method study examined enablers and barriers to peer support participation and model preferences. Participants were recruited from metropolitan and regional areas of Victoria. Fifty-three participants completed a questionnaire and four focus groups and 10 telephone interviews were conducted (n = 34). Participants demonstrated enthusiasm for peer support. Feeling unwell and worry about accessing toilet facilities were main barriers, while accessing information about treatment side effects and making treatment decisions were main positive features. Second, a pilot study determined the response to a face-to-face group and one-on-one telephone programme, the preferred models from study 1. In total, 34 support recipients recruited through clinicians, participated. Half elected to participate in the telephone programme and half in the group programme. Support recipients completed surveys before and after the programmes. Both models were acceptable to participants with high satisfaction rates reported (94-100%) and findings suggested that the two models catered to different peer support needs. Timing of referral and clinician promotion contributed to participation.

摘要

虽然结直肠癌是澳大利亚男性和女性最常见的癌症,但缺乏针对特定疾病的同伴支持服务。本研究调查了结直肠癌患者对同伴支持的可接受性和偏好模式。首先,一项混合方法研究调查了参与同伴支持的促进因素和障碍以及对模型的偏好。参与者是从维多利亚州的都会区和地区招募的。53 名参与者完成了一份问卷和四个焦点小组,进行了 10 次电话访谈(n=34)。参与者对同伴支持表现出热情。身体不适和担心使用厕所设施是主要障碍,而获取有关治疗副作用和做出治疗决策的信息是主要的积极特征。其次,一项试点研究确定了对面对面小组和一对一电话计划的反应,这是研究 1 中首选的模式。共有 34 名通过临床医生招募的支持接受者参加了研究。一半人选择参加电话计划,一半人选择参加小组计划。支持接受者在计划前后完成了调查。这两种模式都得到了参与者的认可,报告的满意度很高(94-100%),研究结果表明,这两种模式满足了不同的同伴支持需求。转介的时间和临床医生的推广有助于参与。

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