Kett Charlotte, Flint Julia, Openshaw Mark, Raza Karim, Kumar Kanta
Sandwell and West Birmingham Hospitals NHS Trust, Birmingham, UK.
Musculoskeletal Care. 2010 Dec;8(4):204-14. doi: 10.1002/msc.185. Epub 2010 Aug 26.
Effective management of flares of rheumatoid arthritis (RA) can improve symptoms and may delay disease progression. The practice of rheumatologists in managing a flare has been studied, but patients' experiences of, and responses to, disease flares remain poorly defined. This study aimed to address this issue.
Semi-structured interviews were conducted with 21 patients from an ethnically diverse population who had suffered a recent RA flare. Open questions were asked regarding patients' definitions of a flare, causal attribution, self-management strategies, their triggers to consult health professionals, and the information they had received about RA flares from health professionals. Transcripts were studied using the grounded theory approach to identify themes.
Flares were usually described as worsening joint pain and swelling. Over-use of joints was identified as the most common cause of a flare, and commonly used self-management strategies included rest, gentle exercise and warming the joints. There was some variation in causal attribution and self-management with ethnicity.
This study identified a link between causal attribution of flares and the resultant self-management strategies. A perceived trigger of the flare in some patients formed a focus for their self-management strategies, whereas those who could not identify a cause aimed mainly to alleviate symptoms. A better understanding of patients' perspective in the context of disease flares will allow the development of educational programmes to facilitate more effective self-management of this important manifestation of disease.
有效管理类风湿关节炎(RA)病情发作可改善症状,并可能延缓疾病进展。已有研究探讨了风湿病学家在处理病情发作方面的做法,但患者对疾病发作的体验及反应仍未得到明确界定。本研究旨在解决这一问题。
对21名近期经历过RA病情发作、种族背景各异的患者进行了半结构化访谈。针对患者对病情发作的定义、因果归因、自我管理策略、咨询医疗专业人员的触发因素以及从医疗专业人员处获得的有关RA病情发作的信息,提出了开放性问题。采用扎根理论方法对访谈记录进行研究以确定主题。
病情发作通常被描述为关节疼痛和肿胀加剧。关节过度使用被认为是病情发作最常见的原因,常用的自我管理策略包括休息、适度运动和关节保暖。在因果归因和自我管理方面,不同种族存在一定差异。
本研究确定了病情发作的因果归因与相应的自我管理策略之间的联系。一些患者认为的病情发作触发因素成为其自我管理策略的重点,而那些无法确定病因的患者主要旨在缓解症状。更好地了解患者在疾病发作背景下的观点,将有助于制定教育计划,以促进对这一重要疾病表现的更有效自我管理。