Gülseren Leyla, Cam Birmay, Karakoç Berna, Yiğit Tamer, Danacı Ayşen Esen, Cubukçuoğlu Zeynep, Taş Cumhur, Gülseren Seref, Mete Levent
Ulusal Psikiyatri Kongresi'nde Sizofreni ve Diger Psikotik Bozukluklar Poster Bildirisi.
Turk Psikiyatri Derg. 2010 Fall;21(3):203-12.
The present study aimed to investigate the perceived level of burden of care and its correlates in family members of schizophrenia patients.
The study included 239 schizophrenic patients that were followed-up at the psychiatric outpatient clinics of Izmir Ataturk Education and Research Hospital, and Celal Bayar University Medical School, and 239 of their primary caregivers. Patients were assessed using the Positive and Negative Syndrome Scale (PANNS), Global Assessment of Functioning Scale (GAF), Social Functioning Scale (SFS), Brief Cognitive State Examination (BCE), and UKU Side Effect Rating Scale. Their primary caregivers were assessed using the Perceived Family Burden Scale (PFBS), Beck Depression Inventory (BDI), and Beck Anxiety Inventory (BAI).
Caregiver PFBS scores ere correlated with male patients, female caregivers, inadequate social support, economic difficulty, the presence of chronic physical disorder in the caregivers, patient violence toward the caregivers, total duration of illness, the number of patient hospitalizations, PANNS total and subscale scores, and SFS, BDI, and BAI scores. Perceived burden of care was predicted by the severity of the patients' positive symptoms, SFS independence/competence and interpersonal functioning subscale scores, and caregivers' anxiety and depression levels.
In order to decrease the burden of care in schizophrenia we recommend effective management of patient symptoms, enhancement of patient social functioning, interventions that target caregivers with high levels anxiety and depression, and social support provided by healthcare professionals.
本研究旨在调查精神分裂症患者家庭成员所感知的照料负担水平及其相关因素。
该研究纳入了在伊兹密尔阿塔图尔克教育与研究医院以及切拉尔·贝亚尔大学医学院精神科门诊接受随访的239名精神分裂症患者及其239名主要照料者。使用阳性和阴性症状量表(PANNS)、功能总体评定量表(GAF)、社会功能量表(SFS)、简易认知状态检查(BCE)以及UKU副作用评定量表对患者进行评估。使用感知家庭负担量表(PFBS)、贝克抑郁量表(BDI)和贝克焦虑量表(BAI)对其主要照料者进行评估。
照料者的PFBS得分与男性患者、女性照料者、社会支持不足、经济困难、照料者存在慢性躯体疾病、患者对照料者的暴力行为、疾病总病程、患者住院次数、PANNS总分及各分量表得分以及SFS、BDI和BAI得分相关。患者阳性症状的严重程度、SFS独立性/能力和人际功能分量表得分以及照料者的焦虑和抑郁水平可预测感知到的照料负担。
为了减轻精神分裂症的照料负担,我们建议有效管理患者症状、增强患者社会功能、针对焦虑和抑郁水平较高的照料者进行干预以及由医护人员提供社会支持。