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Managing patient expectations about deidentification.

作者信息

Callier Shawneequa L, Schmidt Harald

机构信息

CaseWestern Reserve University, Bioethics, 10900 Euclid Avenue, School of Medicine, Cleveland, OH 44106, USA.

出版信息

Am J Bioeth. 2010 Sep;10(9):21-3. doi: 10.1080/15265161.2010.494222.

Abstract
摘要

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本文引用的文献

1
How anonymous is 'anonymous'? Some suggestions towards a coherent universal coding system for genetic samples.
J Med Ethics. 2012 May;38(5):304-9. doi: 10.1136/medethics-2011-100181. Epub 2012 Feb 16.
2
Electronic health records and research: privacy versus scientific priorities.
Am J Bioeth. 2010 Sep;10(9):19-20. doi: 10.1080/15265161.2010.492894.
3
Is deidentification sufficient to protect health privacy in research?
Am J Bioeth. 2010 Sep;10(9):3-11. doi: 10.1080/15265161.2010.494215.
4
Anonymization of electronic medical records for validating genome-wide association studies.
Proc Natl Acad Sci U S A. 2010 Apr 27;107(17):7898-903. doi: 10.1073/pnas.0911686107. Epub 2010 Apr 12.
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Tailoring the process of informed consent in genetic and genomic research.
Genome Med. 2010 Mar 24;2(3):20. doi: 10.1186/gm141.
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Patients' views on identifiability of samples and informed consent for genetic research.
Am J Bioeth. 2008 Oct;8(10):62-70. doi: 10.1080/15265160802478404.
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Research on medical records without informed consent.
J Law Med Ethics. 2008 Fall;36(3):560-6. doi: 10.1111/j.1748-720X.2008.304.x.
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Ethics. Identifiability in genomic research.
Science. 2007 Aug 3;317(5838):600-2. doi: 10.1126/science.1147699.
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Genomes for all.
Sci Am. 2006 Jan;294(1):46-54. doi: 10.1038/scientificamerican0106-46.

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