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Is deidentification sufficient to protect health privacy in research?

作者信息

Rothstein Mark A

机构信息

Institute for Bioethics,Health Policy and Law, University of Louisville School of Medicine, 501 East Broadway, Louisville, KY 40202, USA.

出版信息

Am J Bioeth. 2010 Sep;10(9):3-11. doi: 10.1080/15265161.2010.494215.

DOI:10.1080/15265161.2010.494215
PMID:20818545
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3032399/
Abstract
摘要

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Is deidentification sufficient to protect health privacy in research?去识别化是否足以在研究中保护健康隐私?
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本文引用的文献

1
Re-examining respect for human research participants.重新审视对人类研究参与者的尊重。
Kennedy Inst Ethics J. 2009 Dec;19(4):311-38. doi: 10.1353/ken.0.0295.
2
Evaluating re-identification risks with respect to the HIPAA privacy rule.评估 HIPAA 隐私规则下的重新识别风险。
J Am Med Inform Assoc. 2010 Mar-Apr;17(2):169-77. doi: 10.1136/jamia.2009.000026.
3
The role of race and trust in tissue/blood donation for genetic research.种族和信任在遗传研究中的组织/血液捐赠中的作用。
Genet Med. 2010 Feb;12(2):116-21. doi: 10.1097/GIM.0b013e3181cd6689.
4
Privacy versus public health: the impact of current confidentiality rules.隐私与公共卫生:现行保密规则的影响。
Am J Public Health. 2010 Mar;100(3):407-12. doi: 10.2105/AJPH.2009.166249. Epub 2010 Jan 14.
5
Public opinion about the importance of privacy in biobank research.公众对生物样本库研究中隐私重要性的看法。
Am J Hum Genet. 2009 Nov;85(5):643-54. doi: 10.1016/j.ajhg.2009.10.002. Epub 2009 Oct 29.
6
Currents in contemporary ethics. Improving privacy in research by eliminating informed consent? IOM Report misses the mark.当代伦理学中的思潮。通过取消知情同意来改善研究中的隐私?美国医学研究所的报告未达目标。
J Law Med Ethics. 2009 Fall;37(3):507-12. doi: 10.1111/j.1748-720X.2009.00411.x.
7
Pediatric biobanks: approaching informed consent for continuing research after children grow up.儿科生物样本库:探讨儿童长大后继续进行研究的知情同意问题。
J Pediatr. 2009 Oct;155(4):578-83. doi: 10.1016/j.jpeds.2009.04.034.
8
Patients' views on identifiability of samples and informed consent for genetic research.患者对样本可识别性及基因研究知情同意的看法。
Am J Bioeth. 2008 Oct;8(10):62-70. doi: 10.1080/15265160802478404.
9
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.使用高密度单核苷酸多态性(SNP)基因分型微阵列解析对高度复杂混合物贡献微量DNA的个体。
PLoS Genet. 2008 Aug 29;4(8):e1000167. doi: 10.1371/journal.pgen.1000167.
10
Automated de-identification of free-text medical records.自由文本医疗记录的自动去识别化
BMC Med Inform Decis Mak. 2008 Jul 24;8:32. doi: 10.1186/1472-6947-8-32.