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照顾青少年和青年癌症患者:以网络为中心的护理的扎根理论研究。

Caring for teenagers and young adults with cancer: a grounded theory study of network-focused nursing.

机构信息

Department of Oncology, Aarhus University Hospital, Noerrebrogade 44, Building 5, 8000 Aarhus C, Denmark.

出版信息

Eur J Oncol Nurs. 2011 Apr;15(2):152-9. doi: 10.1016/j.ejon.2010.07.010. Epub 2010 Sep 22.

Abstract

UNLABELLED

Teenagers and young adults (TYAs) are extremely vulnerable and dependant on a supportive social network when diagnosed with cancer and undergoing treatment.

PURPOSE

The aim of the study was to generate a substantive theory by exploring processes and strategies of oncology nurses engaged in a nursing programme, which aims at supporting these young patients and their significant others to maintain, establish and strengthen support from their social network during the treatment period.

METHOD

A grounded theory approach was used and data were generated through interviews, observations, informal conversations and documents. All nurses (7) from a Danish oncology youth unit participated.

RESULTS

'Bridging' was defined as the core concept in nurses' strategies aimed at creating a space for the TYAs' normal growth and development. By strategies of 'Tuning in', 'Framing the situation', 'Navigating towards the goal' and 'Connecting people' the nurses attempted to provide a foundation for the seriously ill TYAs to connect to their normal everyday life.

CONCLUSIONS

The study complements existing knowledge of caring for TYAs with cancer, showing how oncology nurses can use their knowledge and position to facilitate involvement of the patients' social network. It contributes with a theoretical framework for clinical practice that offers insight into an unexplored area of nursing. Network-focused nursing is a complex and demanding practice that needs to be addressed by nurses, educators, researchers and health policy makers.

摘要

未加标签

青少年和年轻人(TYAs)在被诊断患有癌症并接受治疗时极其脆弱,依赖于支持性的社交网络。

目的

本研究的目的是通过探索参与护理计划的肿瘤护士的过程和策略,生成一个实质性理论,该计划旨在支持这些年轻患者及其重要他人在治疗期间维持、建立和加强其社交网络的支持。

方法

采用扎根理论方法,通过访谈、观察、非正式对话和文件收集数据。来自丹麦肿瘤青年病房的所有护士(7 人)都参与了研究。

结果

“桥接”被定义为护士策略中的核心概念,旨在为 TYAs 的正常成长和发展创造空间。通过“调谐”、“框定情况”、“朝着目标导航”和“连接人们”的策略,护士试图为重病 TYAs 提供一个连接他们正常日常生活的基础。

结论

本研究补充了对患有癌症的 TYAs 的护理现有知识,展示了肿瘤护士如何利用他们的知识和地位来促进患者社交网络的参与。它为临床实践提供了一个理论框架,深入探讨了护理领域中一个未被探索的领域。以网络为中心的护理是一种复杂且要求很高的实践,需要护士、教育工作者、研究人员和卫生政策制定者来解决。

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