McDougall Janette, Wright Virginia, Schmidt Jonathan, Miller Linda, Lowry Karen
Thames Valley Children's Centre, London, Ontario, Canada.
Dev Neurorehabil. 2011;14(1):41-53. doi: 10.3109/17518423.2010.521795. Epub 2010 Oct 31.
The objective of this paper is to describe how the ICF framework was applied as the foundation for a longitudinal study of changes in quality-of-life (QoL) for youth with chronic conditions.
This article will describe the study's aims, methods, measures and data analysis techniques. It will point out how the ICF framework was used--and expanded upon--to provide a model for studying the impact of factors on changes in QoL for youth with chronic conditions. Further, it will describe the instruments that were chosen to measure the components of the ICF framework and the data analysis techniques that will be used to examine the impact of factors on changes in youths' QoL.
Qualitative and longitudinal designs for studying QoL based on the ICF framework can be useful for unraveling the complex ongoing inter-relationships among functioning, contextual factors and individuals' perceptions of their QoL.
本文旨在描述国际功能、残疾和健康分类（ICF）框架如何作为对慢性病青年生活质量（QoL）变化进行纵向研究的基础。
本文将描述该研究的目的、方法、测量方法和数据分析技术。它将指出ICF框架是如何被使用以及扩展的，以提供一个研究因素对慢性病青年生活质量变化影响的模型。此外，它将描述为测量ICF框架各组成部分而选择的工具以及将用于检验因素对青年生活质量变化影响的数据分析技术。
基于ICF框架的生活质量定性和纵向设计，对于揭示功能、背景因素和个人对其生活质量的认知之间复杂的持续相互关系可能是有用的。
