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青少年艾滋病感染者污名管理:沉默、秘密与受限制的空间。

Managing stigma in adolescent HIV: silence, secrets and sanctioned spaces.

机构信息

Department of Sexology, University of Quebec in Montreal, Canada.

出版信息

Cult Health Sex. 2011 Mar;13(3):267-81. doi: 10.1080/13691058.2010.525665.

DOI:10.1080/13691058.2010.525665
PMID:21049313
Abstract

HIV is conceived as a disease that combines stigma elements of perceived contagion and socially undesirable behaviours. Drawing on in-depth interviews with professional adolescent service providers from Australia, Canada, the UK and the USA, this paper explores HIV stigma and stigma management in the lives of HIV-positive young people. Findings elucidate how additional layers of stigma relating to 'adolescent rights' and 'embodied innocence' are added to HIV stigma as it is more usually conceived. This study suggests that managing this stigma entails managing silence in the context of the social worlds of the young person, the family and the service provider. Silence emerged as a key theme in the participant narratives and was embedded in the descriptions of young people's lived experiences. Crucially, silence is a product of oppression and inequity but is also a tool for resistance. Silence defends secrets and exists in the spaces, both physical and social, that are created for them in order to manage the stigma in young people's lives. Silences associated with HIV therefore need to be exposed if we are to better understand what HIV truly means to seropositive young people and how 'silences' may minimise or exacerbate their experience of HIV stigma inside and outside the context of programmes.

摘要

艾滋病毒被认为是一种疾病,它结合了可感知的传染性和社会上不受欢迎的行为等污名元素。本文通过对来自澳大利亚、加拿大、英国和美国的专业青少年服务提供者的深入访谈,探讨了艾滋病毒感染者青少年生活中的污名和污名管理。研究结果阐明了与“青少年权利”和“身体上的纯真”相关的额外污名层是如何在通常意义上的艾滋病毒污名之外被添加的。本研究表明,管理这种污名将需要在年轻人、家庭和服务提供者的社会世界背景下管理沉默。沉默是参与者叙述中的一个关键主题,嵌入在年轻人生活经历的描述中。至关重要的是,沉默是压迫和不平等的产物,但也是一种抵抗的工具。沉默保护秘密,并存在于为他们创造的物理和社会空间中,以管理年轻人生活中的污名。因此,如果我们要更好地理解艾滋病毒对血清阳性的年轻人意味着什么,以及“沉默”如何在项目内外最小化或加剧他们的艾滋病毒污名体验,就需要揭露与艾滋病毒相关的沉默。

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