为波多黎各儿童开发一种基于社区的家庭哮喘管理干预措施。
The development of a community-based family asthma management intervention for Puerto Rican children.
作者信息
Martin Christina Gamache, Andrade Adrianne Anderson, Vila Doryliz, Acosta-Pérez Edna, Canino Glorisa
机构信息
University of Oregon, Department of Psychology, OR, USA.
出版信息
Prog Community Health Partnersh. 2010 Winter;4(4):315-24. doi: 10.1353/cpr.2010.0025.
BACKGROUND
Puerto Rican children maintain disproportionately high asthma prevalence rates and effective asthma management interventions are needed.
OBJECTIVES
This article describes how community-based participatory research (CBPR) was implemented in the development of a culturally tailored family asthma management intervention for Puerto Rican children: CALMA (a Spanish acronym for Take Control, Empower Yourself, and Achieve Asthma Management).
METHOD
CALMA was developed according to CBPR principles and contemporary asthma guidelines through the collaboration of diverse members of the local, professional, and medical communities, academia, and local government. All group members contributed unique perspectives, making CALMA's development a collaborative effort.
LESSONS LEARNED
The CALMA community dealt with challenges in both incorporating and managing a diverse group of stakeholders and maintaining equity in decision making power. However, the community maintained strengths, such as incorporating culturally accepted remedies and addressing culturally specific myths in the intervention, as well as having the medical community directly involved in overseeing the accuracy of the intervention.
CONCLUSION
A CBPR approach enhanced the cultural sensitivity of the intervention as well as its potential for sustainability.
背景
波多黎各儿童的哮喘患病率一直居高不下，亟需有效的哮喘管理干预措施。
目的
本文介绍了基于社区的参与性研究（CBPR）如何应用于为波多黎各儿童开发一种文化适应性家庭哮喘管理干预措施：CALMA（西班牙语首字母缩写，意为“掌控、增强自身能力并实现哮喘管理”）。
方法
CALMA依据CBPR原则和当代哮喘指南，通过当地、专业、医疗社区、学术界和地方政府的不同成员合作开发而成。所有小组成员都贡献了独特观点，使CALMA的开发成为一项合作成果。
经验教训
CALMA社区在纳入和管理不同利益相关者群体以及在决策权力方面保持公平性方面都面临挑战。然而，该社区保持了一些优势，比如在干预措施中纳入文化上可接受的疗法并解决特定文化中的误解，以及让医疗社区直接参与监督干预措施的准确性。
结论
CBPR方法增强了干预措施的文化敏感性及其可持续性潜力。
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