Fitch Margaret I, Miller Debbie, Sharir Sharon, McAndrew Alison
Odette Cancer Centre, Toronto, ON.
Can Oncol Nurs J. 2010 Fall;20(4):177-87. doi: 10.5737/1181912x204177181.
Patients being treated for bladder cancer share issues in common with other cancer patients, but also experience issues that are unique to their surgical treatment. This study used a descriptive qualitative approach to explore the experiences of patients who had undergone radical cystectomy for bladder cancer Twenty-two participants were interviewed in-depth on one occasion and were invited to attend a focus group session following the analysis of the interview transcripts. Participants described the shock of their diagnosis, their lack of information about bladder cancer, the importance of clear communication with care providers, and the types of adjustments they had to make following surgery. Specifically, changes in bodily function, body image, sexual relationships, and intimacy presented challenges for these participants. Although there was a sense of acceptance about the treatment-related events, there were still significant adjustments required by individuals following their surgery. Information, open communication, and support from family and friends were seen as important factors in helping patients adjust after surgery. Patients require clear, concise and consistent information about their cancer, treatment options, and course of care. Nurses caring for patients following surgery for bladder cancer need to understand the unique needs of these patients.
膀胱癌患者与其他癌症患者有一些共同的问题，但也有因手术治疗而产生的独特问题。本研究采用描述性定性研究方法，以探究接受膀胱癌根治性膀胱切除术患者的经历。22名参与者接受了一次深入访谈，并在访谈记录分析后受邀参加焦点小组会议。参与者描述了他们确诊时的震惊、对膀胱癌信息的缺乏、与医护人员清晰沟通的重要性，以及术后必须做出的调整类型。具体而言，身体功能、身体形象、性关系和亲密关系的变化给这些参与者带来了挑战。尽管对与治疗相关的事件有接受感，但患者术后个人仍需进行重大调整。家人和朋友提供的信息、开放沟通及支持被视为帮助患者术后调整的重要因素。患者需要关于其癌症、治疗选择和护理过程的清晰、简洁且一致的信息。护理膀胱癌术后患者的护士需要了解这些患者的独特需求。
