*For members of the PASS Network, see the Appendix online at http://links.lww.com/AOG/A212. From the Department of Obstetrics and Gynecology, Faculty of Health Science, Stellenbosch University, Tygerberg, South Africa; the Health Disparities Research Center, Sanford Research/University of South Dakota, Sioux Falls, South Dakota; the Department of Pathology, Children's Hospital Boston and Harvard Medical School, Boston, Massachusetts; the Department of Pathology, University of South Dakota School of Medicine, Sioux Falls, South Dakota; the Division of Forensic Medicine and Pathology, Department of Pathology and Western Cape Forensic Pathology Services, Health Science Faculty, Stellenbosch University, Cape Town, South Africa.
Obstet Gynecol. 2011 Jan;117(1):167-171. doi: 10.1097/AOG.0b013e318200cb17.
Research in sudden death in fetuses (stillbirth) and infants (sudden infant death syndrome [SIDS]) is urgently needed, particularly in high-risk populations involving socioeconomic disadvantaged families. Essential to such research is the analysis of fetal and infant tissues at autopsy. Obtaining consent for donating autopsy tissues for research is especially problematic in socioeconomically disadvantaged populations in which mistrust of the medical establishment often exists. In this article, we present communication strategies for obtaining consent for research in autopsy tissues of stillbirth and SIDS cases in socioeconomically disadvantaged populations. Recommendations are provided about preparation for and the timing, setting, and content of the consent interview. The same lines of open and transparent communication delineated in this article are applicable to obtaining consent for the autopsy and autopsy research. Although the grief responses to the untimely death of the fetus or infant are universal and the recommendations of this essay are widely applicable to the general population, the expression of this grief and feelings toward autopsy-based research in socioeconomically disadvantaged populations may raise special issues that health care workers should be aware of when obtaining consent for research on autopsy-derived tissues.
胎儿（死产）和婴儿（婴儿猝死综合征[SIDS]）突然死亡的研究迫在眉睫，特别是在涉及社会经济处于不利地位的家庭的高危人群中。这种研究的关键是对尸检胎儿和婴儿组织进行分析。在社会经济处于不利地位的人群中，获得同意捐赠尸检组织进行研究尤其成问题，因为这些人群通常对医疗机构存在不信任。本文介绍了在社会经济处于不利地位的人群中，对死产和 SIDS 病例尸检组织进行研究获得同意的沟通策略。就同意采访的准备工作、时间、地点和内容提出了建议。本文所阐述的坦诚和透明的沟通原则同样适用于获得尸检和尸检研究的同意。尽管对胎儿或婴儿的过早死亡感到悲痛是普遍存在的，本文的建议也广泛适用于一般人群，但在社会经济处于不利地位的人群中，对基于尸检的研究的悲痛和感受的表达可能会引发一些特殊问题，医疗保健工作者在获得尸检衍生组织研究的同意时应注意这些问题。
