Psychosocial and Spiritual Care Team, Princess Alice Hospice, Esher, UK.
Palliat Med. 2011 Jan;25(1):21-5. doi: 10.1177/0269216310380297.
Using Grounded Theory, this study examines the experience of 19 palliative care chaplains in counselling dying people. Taking a broad-based definition of counselling, and using unstructured individual interviews and group work, the study aimed to understand how palliative care chaplains work with patients at the point when it has been decided to cease active treatment, the point where they risk losing hope and falling into despair. Analysing the data using code-based theory building software, the author identified four organic moments in the chaplain-patient relationship, each moment being a discernable development in the chaplain's being-with the patient: 'evocative presence'; 'accompanying presence'; 'comforting presence'; and 'hopeful presence'. The author represents the four moments as a theory of 'chaplain as hopeful presence', and offers a description of the way in which the quality of presence can facilitate patients to develop 'a hopeful manner' in which hope is reconfigured into an attribute of being. The author concludes (with Levinas) that chaplains and other palliative care staff should be aware that simply being-with an other can, in itself, be hope fostering.
本研究采用扎根理论,考察了 19 名姑息治疗牧师在为临终患者提供咨询时的体验。本研究采用广泛的咨询定义,采用非结构化的个人访谈和小组工作,旨在了解姑息治疗牧师在何时与患者合作,当时已决定停止积极治疗,他们面临失去希望和陷入绝望的风险。作者使用基于代码的理论构建软件对数据进行分析,确定了牧师与患者关系中的四个有机时刻,每个时刻都是牧师与患者相处的明显发展:“唤起存在”;“陪伴存在”;“安慰存在”;和“充满希望的存在”。作者将这四个时刻表示为“牧师作为充满希望的存在”的理论,并描述了存在的质量如何促进患者发展出“充满希望的方式”,即希望被重新配置为存在的属性。作者(与列维纳斯一起)得出结论,牧师和其他姑息治疗人员应该意识到,仅仅与他人在一起本身就可以培养希望。