Laval University, University Hospital Research Centre, Quebec, Canada.
Int J Technol Assess Health Care. 2011 Jan;27(1):31-42. doi: 10.1017/S0266462310001315.
The aim of this study was to review international experiences of patient or public involvement in the field of health technology assessment (HTA).
A systematic review of the scientific literature was conducted. A literature search was performed across nine databases. Other literature was identified through citation tracking, government websites (HTA agencies), and Internet search engines. Characteristics of the studies, description of the activities related to patient or public involvement, impact of these activities on the HTA process, and factors facilitating or limiting involvement were abstracted independently by two reviewers.
A total of 1,441 potentially relevant papers were identified by the main search strategy. Among these, seventeen papers met the inclusion criteria; other search strategies identified seven additional documents. The findings reveal that patient or public involvement in HTA activities was reported in two domains, research and HTA process. In the research domain, patients are consulted to gather evidence about their perspectives, experiences, or preferences about a health technology. These perspectives could add key dimensions to the evaluation of health technologies that might otherwise be overlooked. In the domain of the HTA process, patients or public representatives participate in different stages of this process: prioritization, evidence assessment, or dissemination of findings.
There are few published examples of experiences involving patients and the public in HTA. These examples show that patients' or the public's perspectives could add important dimensions to the evaluation of health technologies. However, there is a need to develop more systematic approaches to considering patients' and the public's perspectives in HTA.
本研究旨在综述国际上在卫生技术评估（HTA）领域中患者或公众参与的经验。
对科学文献进行了系统综述。在九个数据库中进行了文献检索。通过引文追踪、政府网站（HTA 机构）和互联网搜索引擎发现了其他文献。由两名评审员独立提取研究的特征、与患者或公众参与相关的活动描述、这些活动对 HTA 过程的影响以及促进或限制参与的因素。
通过主要检索策略共确定了 1441 篇潜在相关的论文。其中，17 篇论文符合纳入标准；其他检索策略又确定了 7 篇文献。研究结果表明，患者或公众参与 HTA 活动主要集中在两个领域，即研究和 HTA 过程。在研究领域，患者被咨询以收集有关其对卫生技术的看法、经验或偏好的证据。这些观点可能会为卫生技术评估增加一些可能被忽视的关键维度。在 HTA 过程领域，患者或公众代表参与该过程的不同阶段：优先级、证据评估或研究结果的传播。
目前只有少数关于患者和公众参与 HTA 的经验发表。这些例子表明，患者或公众的观点可以为卫生技术评估增加重要的维度。然而，需要制定更系统的方法来考虑患者和公众在 HTA 中的观点。
