案例研究：Facebook 上 HIV 预防研究的伦理案例研究：正义研究。
Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us study.
机构信息
MPH, Colorado School of Public Health, University of Colorado Denver, 13001 East 17th Place, Building 500, Campus Box B-119, Aurora, CO 80045, USA.
出版信息
J Pediatr Psychol. 2011 Nov-Dec;36(10):1082-92. doi: 10.1093/jpepsy/jsq126. Epub 2011 Feb 3.
Abstract
OBJECTIVE
To consider issues related to research with youth on social networking sites online.
METHODS
Description of the data collection process from 1,588 participants in a randomized controlled trial testing the efficacy of HIV prevention education delivered on Facebook. Using respondent-driven sampling, staff-recruited participants are encouraged to recruit up to three friends to enroll in the study.
RESULTS
Researchers should (a) consider whether an online social networking site is an appropriate place to implement a research study; (b) offer opportunities to review informed consent documents at multiple times and in multiple locations throughout the study; and (c) collect data outside the social networking site and store it behind secure firewalls to ensure it will not be accessible to any person on the social networking site.
CONCLUSIONS
Online social networks are growing in popularity. Conducting research on social media sites requires deliberate attention to consent, confidentiality, and security.
摘要
目的
考虑与在社交网站上对青少年进行研究相关的问题。
方法
描述从参加在 Facebook 上进行的艾滋病毒预防教育功效的随机对照试验的 1588 名参与者中收集数据的过程。使用受访者驱动抽样，鼓励工作人员招募的参与者招募多达三个朋友来参加研究。
结果
研究人员应（a）考虑在线社交网站是否是实施研究的合适场所；（b）提供多次和在整个研究过程中的多个地点查看知情同意文件的机会；（c）在社交网站之外收集数据并将其存储在安全的防火墙后面，以确保社交网站上的任何人都无法访问它。
结论
在线社交网络越来越受欢迎。在社交媒体网站上进行研究需要认真注意同意、保密和安全。
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