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眼球摘除患者的生活质量。

Quality of life of eye amputated patients.

机构信息

Department of Neuroscience and Pharmacology, University of Copenhagen, Eye Pathology Institute, Copenhagen, Denmark.

出版信息

Acta Ophthalmol. 2012 Aug;90(5):435-40. doi: 10.1111/j.1755-3768.2010.02092.x. Epub 2011 Feb 10.

Abstract

PURPOSE

To evaluate eye-amputated patients' health-related quality of life, perceived stress, self-rated health, job separation because of illness or disability and socioeconomic position.

METHODS

Patients were recruited from a tertiary referral centre situated in Copenhagen. Inclusion criteria were eye amputation, i.e. evisceration, enucleation, orbital exenteration or secondary implantation of an orbital implant during the period 1996-2003, and participation in a previous investigation (2005). In total, 159 eye-amputated patients were included, and completed a self-administered questionnaire containing health-related quality of life (SF-36), the perceived stress scale and answered questions about self-rated health, job changes because of illness or disability and socioeconomic status. These results were compared with findings from the Danish Health Interview Survey 2005.

RESULTS

The eye-amputated patients had significantly (p < 0.05) lower scores (poorer health) on all SF-36 subscales and more perceived stress compared to the general population. In all, 43.3% of the patients rated their health as excellent or very good compared to 52.1% of the general population. In total, 25% of the study population has retired or changed to a part-time job because of eye disease. The percentage of eye amputated patients, who were divorced or separated, was twice as high as in the general population.

CONCLUSION

The impact of an eye amputation is considerable. The quality of life, perceived stress and self-rated health of many eye-amputated patients are drastically changed. Eye amputation has a marked negative influence on job separation because of illness or disability and on socioeconomic position.

摘要

目的

评估眼球摘除患者的健康相关生活质量、感知压力、自评健康、因病或残疾离职以及社会经济地位。

方法

患者从哥本哈根的一家三级转诊中心招募。纳入标准为 1996 年至 2003 年期间眼球摘除,即眼内容剜除术、眼球摘除术、眶内容切除术或眼眶植入物二期植入术,以及参加之前的一项调查(2005 年)。共纳入 159 例眼球摘除患者,完成了一份自我管理问卷,其中包括健康相关生活质量(SF-36)、感知压力量表,并回答了自评健康、因病或残疾离职以及社会经济地位变化的问题。这些结果与 2005 年丹麦健康访谈调查的结果进行了比较。

结果

与一般人群相比,眼球摘除患者在所有 SF-36 子量表上的得分均显著(p<0.05)较低(健康状况较差),感知压力也更大。共有 43.3%的患者自评健康状况为优秀或非常好,而一般人群的这一比例为 52.1%。研究人群中共有 25%的人因眼病退休或转为兼职工作。眼球摘除患者离婚或分居的比例是一般人群的两倍。

结论

眼球摘除的影响相当大。许多眼球摘除患者的生活质量、感知压力和自评健康状况发生了巨大变化。眼球摘除对因病或残疾离职以及社会经济地位有显著的负面影响。

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