Division of Health Care Policy and Research, University of Colorado Denver School of Medicine, Aurora, CO, USA.
J Psychosoc Oncol. 2011;29(2):175-98. doi: 10.1080/07347332.2010.548444.
This study explored survivors' perspectives on care delivery and supportive care needs during reentry. Fifty-one individual interviews were conducted with adult leukemia and lymphoma survivors, 3 to 48 months from treatment cessation. Survivors reported poor continuity of care across the patient-survivor transition, difficulty finding appropriate information/services, lack of preparation, lack of support for survivorship issues, and inadequate or poorly timed follow-up as factors contributing to adjustment difficulties at end of treatment and beyond. Improved care coordination is needed after active treatment, including use of an exit interview and delivery of services that are more congruent and better timed to meet ongoing and emergent survivorship needs.
本研究探讨了幸存者在重返社会过程中对护理服务和支持性护理需求的看法。对 51 名成年白血病和淋巴瘤幸存者进行了个体访谈，他们在治疗结束后 3 至 48 个月。幸存者报告称，在患者-幸存者过渡期间，护理连续性差，难以找到适当的信息/服务，准备不足，对生存问题支持不足，以及随访不足或时机不当，这些都是导致治疗结束后和以后调整困难的因素。在积极治疗后需要更好的护理协调，包括使用离职面谈和提供更符合并更好地满足持续和紧急生存需求的服务。
