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“通往临终关怀的桥梁”:乌干达社区志愿者计划的影响。

'A bridge to the hospice': the impact of a Community Volunteer Programme in Uganda.

机构信息

Evidence-based Practice Research Centre, Edge Hill University, Faculty of Health, St Helens Road, Ormskirk, Lancashire L39 4QP, UK.

出版信息

Palliat Med. 2011 Oct;25(7):706-15. doi: 10.1177/0269216310397566. Epub 2011 Mar 14.

DOI:10.1177/0269216310397566
PMID:21402659
Abstract

In Africa, the need for palliative care provision is escalating with an increasing number of people living with HIV/AIDS, coupled with rising cancer and AIDS-related cancer diagnoses. In Uganda there is a shortage of doctors, particularly in rural areas. To address this Hospice Africa Uganda developed a Community Volunteer Programme to train volunteers to help by providing support to patients in their own homes. The aim of this qualitative study was to evaluate the impact of the Community Volunteer Programme. Sixty-four interviews, with patients (21), community volunteer workers (CVWs) (32), and the hospice clinical teams (11) were conducted, using semi-structured digitally recorded individual, group and focus group interviews, at the Hospice Africa Uganda sites. The results reported the value of the Community Volunteer Programme, including the impact on patients and families, and how the CVWs acted as a 'bridge to the hospice' in identifying patients. Developing financial challenges that are emerging which could potentially impact on the programme were reported. The Community Volunteer Programme appears to be having a positive impact on patients, families and the hospice team, and is a model worthy of consideration by other developing countries to allow the expansion of palliative care.

摘要

在非洲,由于越来越多的人感染艾滋病毒/艾滋病,加上癌症和艾滋病相关癌症的诊断不断增加,对姑息治疗服务的需求不断增加。在乌干达,医生短缺,特别是在农村地区。为了解决这个问题,非洲临终关怀协会乌干达分部制定了一项社区志愿者计划,培训志愿者在家中为患者提供支持。本项定性研究旨在评估社区志愿者计划的影响。在非洲临终关怀协会乌干达分部的各个站点,通过半结构化数字记录的个人、小组和焦点小组访谈,对 64 名患者(21 名)、社区志愿者(32 名)和临终关怀临床团队(11 名)进行了采访。研究结果报告了社区志愿者计划的价值,包括对患者及其家庭的影响,以及志愿者如何作为“通往临终关怀的桥梁”来识别患者。报告还指出了正在出现的财务挑战,这些挑战可能会对该计划产生影响。社区志愿者计划似乎对患者、家庭和临终关怀团队产生了积极的影响,是一个值得其他发展中国家考虑的模式,以扩大姑息治疗的范围。

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