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残疾儿童家庭中的心理社会问题。

Psychosocial problems in families of disabled children.

作者信息

Singhi P D, Goyal L, Pershad D, Singhi S, Walia B N

机构信息

Department of Pediatrics, Postgraduate Institute of Medical Education and Research, Chandigarh, India.

出版信息

Br J Med Psychol. 1990 Jun;63(2):173-82. doi: 10.1111/j.2044-8341.1990.tb01610.x.

Abstract

Psychosocial problems faced by parents and other family members were studied in 50 families with a physically disabled child (PD group), 50 with a mentally retarded child (MR group) and 50 with a healthy child (control group). A semi-structured questionnaire assisted interview and standardized scales were used to measure social burden, marital adjustment and maternal neuroticism. Families with disabled children perceived greater financial stress, frequent disruption of family routine and leisure, poor social interaction, and ill effects on their physical and mental health as compared to families of control children. The overall social burden scores were significantly higher in both the groups with disabled children as compared to controls (mean scores PD 17.8, MR 14.6, C 0.72, p less than .001), and showed a significant inverse correlation with the socio-economic and educational status of parents. The neuroticism scores were also significantly higher (PD 23.7, MR 19.0, C 9.6, p less than .01), and the marital adjustment scores lower (PD 75, MR 79, C 86, p less than .01) in families with disabled children. Appropriate management of these problems should be part of rehabilitation programmes.

摘要

对50个有肢体残疾儿童的家庭(肢体残疾组)、50个有智力发育迟缓儿童的家庭(智力发育迟缓组)和50个有健康儿童的家庭(对照组)中父母及其他家庭成员所面临的心理社会问题进行了研究。采用半结构化问卷调查辅助访谈和标准化量表来衡量社会负担、婚姻调适和母亲的神经质。与对照组儿童的家庭相比,残疾儿童家庭感受到更大的经济压力、家庭日常和休闲活动频繁被打乱、社交互动不佳以及对其身心健康的不良影响。与对照组相比,两个残疾儿童组的总体社会负担得分显著更高(肢体残疾组平均得分17.8,智力发育迟缓组14.6,对照组0.72,p<0.001),并且与父母的社会经济和教育状况呈显著负相关。残疾儿童家庭的神经质得分也显著更高(肢体残疾组23.7,智力发育迟缓组19.0,对照组9.6,p<0.01),婚姻调适得分更低(肢体残疾组75,智力发育迟缓组79,对照组86,p<0.01)。对这些问题进行适当管理应成为康复计划的一部分。

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