Department of Endocrinology, Diabetes, and Rheumatology, University Hospital Duesseldorf, Heinrich-Heine-University Duesseldorf, Duesseldorf, Germany.
Arthritis Care Res (Hoboken). 2011 Apr;63(4):604-11. doi: 10.1002/acr.20399.
To analyze the inquiries sent to an online ask-the-rheumatologist service in order to identify the users' needs and requirements.
The official web site of the German Competence Network Rheumatology (www.rheumanet.org) provided expert information for patients, relatives, and physicians. We analyzed the content of 1,133 inquiries posted over 5 years and the experts' answers were blinded for analyses.
Patients (60.0%), relatives (24.3%), and physicians (15.7%) addressed the experts. Inquiries were predominantly sent by women (62.2%). Distinct rheumatic diseases were mentioned in 40.5% of the inquiries, and 16.3% reported musculoskeletal symptoms without a definite diagnosis. The number of questions ranged from 1-7 per inquiry (mean±SD 1.58±0.9). Of the inquiries, 33.2% contained personal histories, 24.9% searched for a rheumatologist nearby, and 11.6% asked for a "second opinion." The questions covered a wide range of interests, including medication (30.8%), diagnosis-related issues (15.7%), laboratory tests (6.9%), (treatment) guidelines (6.2%), sexual and reproductive health issues (4.1%), and clinical trials (3.4%). In more than 50% of the inquiries, the information requested from the experts was already at least partly published on the web site. The experts' answers covered the users' questions completely in 91.8%, partly in 6.1%, and not at all in 2.1%.
A standardized medical web site providing tailored and trustworthy information for all user groups gains from an ask-the-expert service. Only such an interactive online application is able to satisfy users' actual demands: searching for specific individualized information on the internet. Therefore, an ask-the-expert service contributes to optimized patient care.
分析向在线风湿病专家咨询服务提出的查询，以确定用户的需求。
德国风湿病学会联合会（www.rheumanet.org）的官方网站为患者、家属和医生提供专家信息。我们分析了 5 年内发布的 1133 条查询内容，专家的回答对分析结果是盲态的。
患者（60.0%）、家属（24.3%）和医生（15.7%）向专家提出了问题。查询主要由女性（62.2%）发送。在 40.5%的查询中提到了明确的风湿病，16.3%报告了没有明确诊断的肌肉骨骼症状。每条查询的问题数量为 1-7 个（平均值±标准差 1.58±0.9）。33.2%的查询包含个人病史，24.9%的查询寻找附近的风湿病医生，11.6%的查询要求“第二意见”。问题涵盖了广泛的兴趣领域，包括药物治疗（30.8%）、与诊断相关的问题（15.7%）、实验室检查（6.9%）、（治疗）指南（6.2%）、性和生殖健康问题（4.1%）以及临床试验（3.4%）。在超过 50%的查询中，专家从网站上获得的信息至少部分已经发布。专家的回答完全涵盖了用户问题的 91.8%，部分涵盖了 6.1%，完全没有涵盖的占 2.1%。
一个提供针对所有用户群体的标准化医学网站，并提供定制化和值得信赖的信息，从专家咨询服务中获益。只有这样一种交互式在线应用程序能够满足用户的实际需求：在互联网上搜索特定的个性化信息。因此，专家咨询服务有助于优化患者护理。
