Faculty of Medical Sciences, University of Campinas, Campinas, Brazil.
Epilepsy Behav. 2011 Sep;22(1):55-62. doi: 10.1016/j.yebeh.2011.02.014. Epub 2011 Mar 31.
Stigma is a major issue for people who develop epilepsy. Reducing stigma is a major focus of activity for the epilepsy patient support groups globally. In this paper, we introduce some key ideas and debates about the nature of and drivers for the stigma of epilepsy, including recent arguments about the need to frame analyses of the nature of epilepsy stigma within sociological debates about conflict and power. We then consider the role of the legislative process for redressing power imbalances that promote or maintain epilepsy stigma; and the value of tailored educational campaigns and programmes directed at stigma reduction. Finally, we consider the nature of 'difference' as experienced by people with epilepsy and how that difference translates into stigma; and provide evidence from a specific targeted intervention to combat epilepsy stigma that its reduction is an achievable goal.
耻辱感是癫痫患者面临的一个主要问题。减少耻辱感是全球癫痫患者支持团体活动的主要重点。在本文中，我们介绍了一些关于癫痫耻辱感的性质和驱动因素的关键观点和争论，包括最近关于需要在关于冲突和权力的社会学争论中构建对癫痫耻辱感性质的分析的论点。然后，我们考虑了立法过程在纠正促进或维持癫痫耻辱感的权力失衡方面的作用；以及针对减少耻辱感的针对性教育活动和计划的价值。最后，我们考虑了癫痫患者所经历的“差异”的性质，以及这种差异如何转化为耻辱感；并提供了一项针对癫痫耻辱感的具体干预措施的证据，表明减少这种耻辱感是一个可以实现的目标。
