Piacentini Valentina, Zuin Annalisa, Cattaneo Davide, Schindler Antonio
Department of Clinical Sciences L. Sacco, Università degli Studi di Milano, Fondazione Don Gnocchi Onlus, IRCCS, Milan, Italy.
Folia Phoniatr Logop. 2011;63(6):289-95. doi: 10.1159/000322800. Epub 2011 Apr 6.
To develop a tool to measure quality of life (QOL) in the dysarthric speaker (QOL-DyS).
The study consisted of two phases: scale development and item reduction (phase 1), and reliability and validity analysis (phase 2). The 100-item 'Dysarthria from the Point of View of the Dysarthric Patient' questionnaire was used for item development; the data from 50 dysarthric patients were measured for internal consistency and the 40-item QOL-DyS was developed. A second group of 50 dysarthric patients and 30 control participants were recruited for phase 2. Internal consistency and test-retest reliability were analyzed through Cronbach's α coefficient and intraclass correlation coefficient (ICC), respectively. The scores obtained from the pathological and the control group were compared using the Mann-Whitney test. Finally, the correlation between the QOL-DyS and dysarthria severity was assessed using the Spearman test.
An excellent internal consistency (α = 0.90) and test-retest reliability (ICC = 0.98, 95% CI: 0.97-0.99) were found; the score difference between the dysarthric and control groups was significant (p < 0.001). The QOL-DyS scores correlated positively with the severity of dysarthria (r = 0.43).
The QOL-DyS is a reliable and valid tool to assess QOL in patients with dysarthria.
开发一种用于测量构音障碍患者生活质量（QOL-DyS）的工具。
本研究包括两个阶段：量表开发与项目缩减（第一阶段），以及信效度分析（第二阶段）。使用包含100个条目的“从构音障碍患者角度看构音障碍”问卷进行条目开发；对50名构音障碍患者的数据进行内部一致性测量，并由此开发出包含40个条目的QOL-DyS。招募了另一组50名构音障碍患者和30名对照参与者用于第二阶段研究。分别通过Cronbach's α系数和组内相关系数（ICC）分析内部一致性和重测信度。使用曼-惠特尼检验比较病理组和对照组获得的分数。最后，使用斯皮尔曼检验评估QOL-DyS与构音障碍严重程度之间的相关性。
发现具有出色的内部一致性（α = 0.90）和重测信度（ICC = 0.98，95% CI：0.97 - 0.99）；构音障碍组与对照组之间的分数差异具有统计学意义（p < 0.001）。QOL-DyS分数与构音障碍严重程度呈正相关（r = 0.43）。
QOL-DyS是评估构音障碍患者生活质量的可靠且有效的工具。
