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达标治疗类风湿关节炎:国际建议的患者版。

Treating rheumatoid arthritis to target: the patient version of the international recommendations.

机构信息

Department Medical Humanities, VU Medical Centre, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands.

出版信息

Ann Rheum Dis. 2011 Jun;70(6):891-5. doi: 10.1136/ard.2010.146662. Epub 2011 Apr 7.

Abstract

To transcribe the treat-to-target (T2T) recommendations into a version that can be easily understood by patients. A core group of physicians and patients involved in the elaboration of the T2T recommendations produced a draft version of the T2T recommendations in lay language. This version was discussed, changed and reworded during a 1-day meeting with nine patients with rheumatoid arthritis (RA) from nine different European countries. Finally, the level of agreement with the translation and with the content of the recommendations was assessed by the patient participants. The project resulted in a patient version of the T2T recommendations. The level of agreement with the translation and the content was high. The group discussion revealed a number of potential barriers for the implementation of the recommendations in clinical practice, such as inequalities in arthritis healthcare provision across Europe. An accurate version of the T2T recommendations that can be easily understood by patients is available and can improve the shared decision process in the management of RA.

摘要

将治疗目标(T2T)建议转化为患者易于理解的版本。一组核心医生和患者参与了 T2T 建议的制定,他们用通俗易懂的语言起草了 T2T 建议的草案。在一次为期一天的会议上,来自欧洲九个不同国家的九名类风湿关节炎(RA)患者对该草案进行了讨论、修改和改写。最后,患者参与者对翻译和建议内容的一致性进行了评估。该项目产生了 T2T 建议的患者版本。对翻译和内容的一致性评价很高。小组讨论揭示了一些建议在临床实践中实施的潜在障碍,例如欧洲各地关节炎医疗保健服务的不平等。患者易于理解的 T2T 建议的准确版本已经可用,并可以改善 RA 管理中的共同决策过程。

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