儿童血液恶性肿瘤患者的照料负担。
Burden of care in patents of children suffering from haematological malignancies.
机构信息
Parmanand Kulhara, MD. FRCPsych., Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh-160 012.
出版信息
Indian J Psychiatry. 1998 Jan;40(1):13-20.
The burden of cars experienced by the parents of children suffering from haematological malignancies was the focus of the present investigation. Two groups of children-one with acute lymphoblastic leukaemia (N=23) and the other with hodgkin's disease (N=14) comprised the study sample. The key relatives of these children who also were the caregivers were assessed on a schedule of stressful life events, locus of control, burden of care, and neuroticism. In both groups, the number of stressful life events reported as well as the burden experienced by the relatives were comparable. It was observed that parents had anxiety even though the children were in a state of remission. The importance of recognising the burden experienced in the total management of child with a haematological malignancy is discussed.
本研究的重点是患有血液恶性肿瘤儿童的父母所承受的负担。研究样本包括两组儿童：一组患有急性淋巴细胞白血病（N=23），另一组患有霍奇金病（N=14）。这些儿童的主要亲属也是照顾者，他们接受了应激性生活事件、控制源、照顾负担和神经质的评估。在这两组中，报告的应激性生活事件的数量以及亲属所经历的负担是相当的。尽管孩子们已经处于缓解状态，但父母仍感到焦虑。讨论了识别血液恶性肿瘤儿童全面管理中所经历的负担的重要性。
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