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印度白癜风和银屑病患者耻辱感的测量。

A measurement of the stigma among vitiligo and psoriasis patients in India.

机构信息

Schieffelin Institute of Health-Research and Leprosy Centre, Karigiri-632 106, Dist-Vellore, Tamil Nadu, India.

出版信息

Indian J Dermatol Venereol Leprol. 2011 May-Jun;77(3):300-6. doi: 10.4103/0378-6323.79699.

Abstract

BACKGROUND AND AIM

The aim is to measure and to compare the level of social participation experienced by vitiligo and psoriasis patients in their domestic and social life in an Indian context.

METHODS

A cross-sectional comparative study with a sample of 150 cases each of psoriasis and vitiligo, a total of 300 subjects. A detailed clinical assessment of these two conditions, including the extent of lesions on the affected body parts, socioeconomic status and participation levels in social and domestic lives, was done.

RESULTS

The result showed that, 17.3% of vitiligo patients participated minimally in domestic and social life, whereas 28% of psoriasis patients had this problem (P=0.027). Extreme participation restriction was observed only among psoriasis patients (2.7%). Psoriasis patients also faced significantly more restrictions in a number of day-to-day life situations such as, less confidence in learning and applying knowledge, difficulties in meaningfully participating in major life areas like, work, education and employment, and also in community, social and civic life (all three domains P<0.0001), to vitiligo patients.

CONCLUSION

Both psoriasis and vitiligo patients suffered moderate to severe restriction while participating in their domestic and social life. Of these two groups, psoriasis patients faced significantly more restrictions in a number of day-to-day life situations. The Indian population of this study was predominantly dark-skinned and hypo-pigmentation as seen in vitiligo is much more noticeable than psoriatic red patches. However, the results showed that the component of hypo or hyperpigmentation of the skin is not the only factor leading to participation restrictions.

摘要

背景与目的

本研究旨在评估并比较印度背景下,白癜风和银屑病患者在家庭和社会生活中的社会参与度。

方法

采用横断面对比研究方法,纳入 150 例白癜风患者和 150 例银屑病患者,共 300 例患者。对这两种疾病进行详细的临床评估,包括受累身体部位的皮损范围、社会经济状况和社会及家庭生活中的参与度。

结果

结果显示,17.3%的白癜风患者在家庭和社会生活中参与度最低,而 28%的银屑病患者存在该问题(P=0.027)。仅在银屑病患者中观察到极端的参与受限(2.7%)。银屑病患者在许多日常生活情况下也面临着显著更多的限制,例如,在学习和应用知识方面缺乏信心、在工作、教育和就业等重要生活领域难以有意义地参与、以及在社区、社会和公民生活中(所有三个领域 P<0.0001),而这些方面相较于白癜风患者。

结论

白癜风和银屑病患者在参与家庭和社会生活时均受到中度至重度的限制。在这两组患者中,银屑病患者在许多日常生活情况下面临着更多的限制。本研究中的印度人群主要为深色皮肤人群,而白癜风患者的色素减退现象比银屑病患者的红色斑块更为明显。然而,研究结果表明,皮肤的色素减退或增多并不是导致参与受限的唯一因素。

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