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银屑病患者的污名化:小型综述。

Stigmatization in Patients With Psoriasis: A Mini Review.

机构信息

Department of Dermatology, State Key Laboratory of Complex Severe and Rare Diseases, National Clinical Research Center for Skin and Immune Diseases, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China.

出版信息

Front Immunol. 2021 Nov 15;12:715839. doi: 10.3389/fimmu.2021.715839. eCollection 2021.

Abstract

Psoriasis is a chronic and recurrent immune-related skin disease that often causes disfigurement and disability. Due to the visibility of lesions in patients and inadequate understanding of dermatology knowledge in the general public, patients with psoriasis often suffer from stigma in their daily lives, which has adverse effects on their mental health, quality of life, and therapeutic responses. This review summarized the frequently used questionnaires and scales to evaluate stigmatization in patients with psoriasis, and recent advances on this topic. , , and have been commonly used. The relationship between sociodemographic characteristics, disease-related variables, psychiatric disorders, quality of life, and stigmatization in patients with psoriasis has been thoroughly investigated with these questionnaires. Managing the stigmatization in patients with psoriasis needs cooperation among policymakers, dermatologists, psychologists, psychiatrists, researchers, and patients. Further studies can concentrate more on these existing topics, as well as other topics, including predictors of perceived stigmatization, stigmatization from non-patient groups, influence of biologics on stigmatization, and methods of coping with stigmatization.

摘要

银屑病是一种慢性、复发性的免疫相关性皮肤疾病,常导致毁容和残疾。由于患者皮损的可见性以及公众对皮肤病学知识的了解不足,银屑病患者在日常生活中常常受到歧视,这对他们的心理健康、生活质量和治疗反应都有不良影响。本文综述了评估银屑病患者歧视的常用问卷和量表,以及该领域的最新进展。目前,广泛使用的量表包括 、 和 。这些问卷深入研究了银屑病患者的社会人口统计学特征、疾病相关变量、精神障碍、生活质量与歧视之间的关系。管理银屑病患者的歧视需要政策制定者、皮肤科医生、心理学家、精神科医生、研究人员和患者共同合作。未来的研究可以更多地关注这些现有主题,以及其他主题,包括感知歧视的预测因素、非患者群体的歧视、生物制剂对歧视的影响,以及应对歧视的方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2a12/8634029/46ff9f023fa3/fimmu-12-715839-g001.jpg

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