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台湾地区唐氏综合征患者家庭的个体与家庭适应

Individual and family adaptation in Taiwanese families living with down syndrome.

机构信息

Chung Shan Medical University, Taichung, Taiwan.

出版信息

J Fam Nurs. 2011 May;17(2):182-201. doi: 10.1177/1074840711405205.

DOI:10.1177/1074840711405205
PMID:21531856
Abstract

The primary aim of this study was to examine the effects of family demographics, family demands, and family appraisal on adaptation in Taiwanese families of children with Down syndrome. A second aim was to assess the potential mediating effect of family appraisal on the relationship between family demands and adaptation. Eighty-three families completed mailed questionnaires. Data were analyzed using a principal component analysis and a mixed linear modeling. Gender, family demands, and family appraisal were significantly associated with individual health. Age of the child with Down syndrome, family demands, and family appraisal significantly accounted for family functioning. Family appraisal partially mediated the relationship between family demands and individual and family adaptation. Identification of family factors that influence adaptation will help in the development of culturally sensitive interventions to improve outcomes in Taiwanese families of children with Down syndrome.

摘要

本研究的主要目的是探讨家庭人口统计学、家庭需求和家庭评估对台湾唐氏综合征儿童家庭适应的影响。第二个目的是评估家庭评估对家庭需求与适应之间关系的潜在中介作用。83 个家庭完成了邮寄问卷。数据分析采用主成分分析和混合线性模型。性别、家庭需求和家庭评估与个人健康显著相关。唐氏综合征儿童的年龄、家庭需求和家庭评估显著影响家庭功能。家庭评估部分中介了家庭需求与个体和家庭适应之间的关系。确定影响适应的家庭因素将有助于制定文化敏感性干预措施,以改善台湾唐氏综合征儿童家庭的结局。

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Individual and family adaptation in Taiwanese families living with down syndrome.台湾地区唐氏综合征患者家庭的个体与家庭适应
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