人类嗜T淋巴细胞病毒I型相关脊髓病/热带痉挛性截瘫（HAM/TSP）功能障碍对生活质量的影响
Implications of HAM/TSP functional incapacity in the quality of life.
作者信息
Shublaq Marcia, Orsini Marco, Puccioni-Sohler Marzia
机构信息
Neuroinfection Clinic, Gaffrée e Guinle Hospital, University of State of Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
出版信息
Arq Neuropsiquiatr. 2011 Apr;69(2A):208-11. doi: 10.1590/s0004-282x2011000200013.
OBJECTIVE
To identify the functional status and quality of life of HAM/TSP patients.
METHOD
We evaluated prospectively 30 HAM/TSP patients (20 females) seen in the Neuroinfection Clinic of the HUGG. The functional capacity was analyzed by the functional independence measure (FIM), the expanded disability status (EDSS) scale and the Osame's motor disability score (OMDS). The quality of life was assessed by the Short-Form Health Survey 36 (SF-36)TM.
RESULTS
All patients need assistance device. The FIM, OMDS and EDSS scores classified 70%, 67% and 67% of the patients as dependent, respectively. The lowest scores of the SF-36 survey were found in the domains related to the physical health (D1, D2), role-emotional functioning (D7) and social functioning (D6).
CONCLUSION
Our data suggest that the HAM/TSP physical impairment has an impact in the emotional and social issues, considering the limitation in the daily activities.
目的
确定人类T细胞白血病病毒I型相关脊髓病/热带痉挛性截瘫（HAM/TSP）患者的功能状态和生活质量。
方法
我们前瞻性评估了在日内瓦大学医院神经感染门诊就诊的30例HAM/TSP患者（20例女性）。通过功能独立性测量（FIM）、扩展残疾状态量表（EDSS）和小见运动残疾评分（OMDS）分析功能能力。采用健康调查简表36（SF-36）TM评估生活质量。
结果
所有患者均需要辅助设备。FIM、OMDS和EDSS评分分别将70%、67%和67%的患者归类为依赖型。SF-36调查中得分最低的领域是与身体健康（领域1、领域2）、角色情感功能（领域7）和社会功能（领域6）相关的领域。
结论
我们的数据表明，考虑到日常活动的限制，HAM/TSP的身体损伤对情感和社会问题有影响。
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