Fat Mary Jane Lim, Doja Asif, Barrowman Nick, Sell Erick
Faculty of Medicine, University of Ottawa, Ontario, Canada.
J Child Neurol. 2011 Jul;26(7):804-9. doi: 10.1177/0883073811402345. Epub 2011 May 6.
The purpose of this study was to assess YouTube videos for their efficacy as a patient resource for infantile spasms. Videos were searched using the terms infantile spasm, spasm, epileptic spasm, and West syndrome. The top 25 videos under each term were selected according to set criteria. Technical quality, diagnosis of infantile spasms, and suitability as a teaching resource were assessed by 2 neurologists using the Medical Video Rating Scale. There were 5858 videos found. Of the 100 top videos, 46% did not meet selection criteria. Mean rating for technical quality was 4.0 of 5 for rater 1 and 3.9 of 5 for rater 2. Raters found 60% and 64% of videos to accurately portray infantile spasms, respectively, with significant agreement (Cohen κ coefficient = 0.75, P < .001). Ten videos were considered excellent examples (grading of 5 of 5) by at least 1 rater. YouTube may be used as an excellent patient resource for infantile spasms if guided search practices are followed.
本研究的目的是评估YouTube视频作为婴儿痉挛症患者资源的有效性。使用术语“婴儿痉挛症”“痉挛”“癫痫性痉挛”和“韦斯特综合征”搜索视频。根据既定标准选择每个术语下排名前25的视频。由2名神经科医生使用医学视频评分量表评估技术质量、婴儿痉挛症的诊断以及作为教学资源的适用性。共找到5858个视频。在排名前100的视频中，46%不符合选择标准。评分者1对技术质量的平均评分为4.0（满分5分），评分者2为3.9（满分5分）。评分者分别发现60%和64%的视频准确描绘了婴儿痉挛症，一致性显著（科恩κ系数=0.75，P<.001）。至少1名评分者认为10个视频是优秀示例（评分5分）。如果遵循有指导性的搜索方法，YouTube可作为婴儿痉挛症出色的患者资源。
