Saleh Mona, Barlow-Stewart Kristine, Meiser Bettina, Kirk Judy, Tucker Kathy
Centre for Genetics Education, Royal North Shore Hospital, St Leonards, Sydney, Australia.
J Genet Couns. 2011 Oct;20(5):465-75. doi: 10.1007/s10897-011-9371-z. Epub 2011 May 10.
This paper examines the culturally determined attitudes and beliefs about kinship, causation of hereditary cancer and other illnesses and the importance of family history amongst Arabic-Australians. Ethnographic interviews were conducted initially with individuals who had attended a family cancer clinic and subsequently with community members. Our aim was to either verify or challenge the reported findings from the clinic sample. Interviews with 38 participants provided cultural descriptions of hereditary illnesses, including cancer, and their causes. While respondents recognized family history as an important factor that reflects on one's likelihood of successful child-bearing, models of kinship described were not in line with Western concepts. Important issues emerged which need to be recognized as potential barriers to access to genetics services and challenges in this community. These include a lack of awareness of inherited cancer and the impact of consanguinity on the understanding of kinship in this community.
本文探讨了阿拉伯裔澳大利亚人在亲属关系、遗传性癌症及其他疾病的病因以及家族病史的重要性方面由文化所决定的态度和信念。最初对参加过家庭癌症诊所的个体进行了人种志访谈，随后又对社区成员进行了访谈。我们的目的是验证或质疑诊所样本报告的结果。对38名参与者的访谈提供了对包括癌症在内的遗传性疾病及其病因的文化描述。虽然受访者认识到家族病史是反映一个人成功生育可能性的重要因素，但所描述的亲属关系模式与西方概念不一致。出现了一些重要问题，这些问题需要被视为该社区获得基因服务的潜在障碍和挑战。其中包括对遗传性癌症缺乏认识以及近亲结婚对该社区亲属关系理解的影响。
