• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
Internet portal use in an academic multiple sclerosis center.互联网门户在学术多发性硬化症中心的使用。
J Am Med Inform Assoc. 2012 Jan-Feb;19(1):128-33. doi: 10.1136/amiajnl-2011-000177. Epub 2011 May 12.
2
Do Patients Who Access Clinical Information on Patient Internet Portals Have More Primary Care Visits?访问患者互联网门户临床信息的患者会有更多的初级保健就诊次数吗?
Med Care. 2016 Jan;54(1):17-23. doi: 10.1097/MLR.0000000000000442.
3
Rapid growth in surgeons' use of secure messaging in a patient portal.外科医生在患者门户网站中使用安全消息传递的情况迅速增加。
Surg Endosc. 2016 Apr;30(4):1432-40. doi: 10.1007/s00464-015-4347-y. Epub 2015 Jun 27.
4
The Digital Divide and Patient Portals: Internet Access Explained Differences in Patient Portal Use for Secure Messaging by Age, Race, and Income.数字鸿沟与患者门户网站:互联网接入情况解释了不同年龄、种族和收入人群在使用患者门户网站进行安全信息交流方面的差异。
Med Care. 2016 Aug;54(8):772-9. doi: 10.1097/MLR.0000000000000560.
5
Consumers' perceptions about and use of the internet for personal health records and health information exchange: analysis of the 2007 Health Information National Trends Survey.消费者对互联网用于个人健康记录和健康信息交换的认知与使用:2007年健康信息国家趋势调查分析
J Med Internet Res. 2010 Dec 18;12(4):e73. doi: 10.2196/jmir.1668.
6
Disparities in Electronic Patient Portal Use in Prenatal Care: Retrospective Cohort Study.产前护理中电子患者门户使用情况的差异:回顾性队列研究。
J Med Internet Res. 2019 Sep 23;21(9):e14445. doi: 10.2196/14445.
7
One size does not fit all: using qualitative methods to inform the development of an Internet portal for multiple sclerosis patients.一刀切并不适用于所有情况:运用定性方法为多发性硬化症患者开发互联网门户网站提供依据。
AMIA Annu Symp Proc. 2005;2005:16-20.
8
The Rules of Engagement: Perspectives on Secure Messaging From Experienced Ambulatory Patient Portal Users.参与规则:来自经验丰富的门诊患者门户网站用户对安全消息传递的看法。
JMIR Med Inform. 2017 Jul 4;5(3):e13. doi: 10.2196/medinform.7516.
9
Large-Scale Survey Findings Inform Patients' Experiences in Using Secure Messaging to Engage in Patient-Provider Communication and Self-Care Management: A Quantitative Assessment.大规模调查结果揭示患者使用安全消息进行医患沟通和自我护理管理的体验:一项定量评估
J Med Internet Res. 2015 Dec 21;17(12):e282. doi: 10.2196/jmir.5152.
10
Reasons and barriers for using a patient portal: survey among patients with diabetes mellitus.使用患者门户网站的原因和障碍:糖尿病患者调查
J Med Internet Res. 2014 Nov 25;16(11):e263. doi: 10.2196/jmir.3457.

引用本文的文献

1
Sociodemographic and Socioeconomic Determinants for the Usage of Digital Patient Portals in Hospitals: Systematic Review and Meta-Analysis on the Digital Divide.医院数字患者门户网站使用情况的社会人口学和社会经济决定因素:关于数字鸿沟的系统评价和荟萃分析
J Med Internet Res. 2025 Jun 3;27:e68091. doi: 10.2196/68091.
2
The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.患者门户的最新进展:适应外部因素、解决障碍和创新。
Appl Clin Inform. 2023 Aug;14(4):654-669. doi: 10.1055/s-0043-1770901. Epub 2023 Aug 23.
3
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.以患者为中心的数字化健康档案及其对健康结果的影响:系统评价。
J Med Internet Res. 2022 Dec 22;24(12):e43086. doi: 10.2196/43086.
4
Multiple Sclerosis and MyChart Messaging: A Retrospective Chart Review Evaluating Its Use.多发性硬化症与MyChart消息传递:一项评估其使用情况的回顾性图表审查
Int J MS Care. 2022 Nov-Dec;24(6):271-274. doi: 10.7224/1537-2073.2020-101. Epub 2022 Aug 3.
5
A Comprehensive Literature Search of Digital Health Technology Use in Neurological Conditions: Review of Digital Tools to Promote Self-management and Support.对数字健康技术在神经疾病中的应用的全面文献检索:促进自我管理和支持的数字工具综述。
J Med Internet Res. 2022 Jul 28;24(7):e31929. doi: 10.2196/31929.
6
The Feasibility of a Web-Based Educational Lifestyle Program for People With Multiple Sclerosis: A Randomized Controlled Trial.基于网络的教育生活方式计划对多发性硬化症患者的可行性:一项随机对照试验。
Front Public Health. 2022 Apr 27;10:852214. doi: 10.3389/fpubh.2022.852214. eCollection 2022.
7
The Potential Impact of Digital Biomarkers in Multiple Sclerosis in The Netherlands: An Early Health Technology Assessment of MS Sherpa.数字生物标志物在荷兰多发性硬化症中的潜在影响:MS Sherpa的早期卫生技术评估
Brain Sci. 2021 Sep 30;11(10):1305. doi: 10.3390/brainsci11101305.
8
Profiles of eHealth Adoption in Persons with Multiple Sclerosis and Their Caregivers.多发性硬化症患者及其护理人员的电子健康采用情况
Brain Sci. 2021 Aug 19;11(8):1087. doi: 10.3390/brainsci11081087.
9
Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)-study protocol for a randomised controlled trial.开发和评估一种基于网络的交互式决策制定程序,用于管理多发性硬化症患者的复发(POWER@MS2)-一项随机对照试验的研究方案。
Trials. 2021 Feb 14;22(1):139. doi: 10.1186/s13063-021-05059-1.
10
Electronic Health Interventions in the Case of Multiple Sclerosis: From Theory to Practice.多发性硬化症中的电子健康干预:从理论到实践
Brain Sci. 2021 Feb 2;11(2):180. doi: 10.3390/brainsci11020180.

本文引用的文献

1
Web-based self-management for patients with multiple sclerosis: a practical, randomized trial.基于网络的多发性硬化症患者自我管理:一项实用、随机试验。
Telemed J E Health. 2011 Jan-Feb;17(1):5-13. doi: 10.1089/tmj.2010.0133. Epub 2011 Jan 9.
2
New perspectives in the natural history of multiple sclerosis.多发性硬化症自然史的新视角。
Neurology. 2010 Jun 15;74(24):2004-15. doi: 10.1212/WNL.0b013e3181e3973f.
3
Sharing health data for better outcomes on PatientsLikeMe.在“患者如我”平台上分享健康数据以获得更好的结果。
J Med Internet Res. 2010 Jun 14;12(2):e19. doi: 10.2196/jmir.1549.
4
Design and implementation of a secure and user-friendly broker platform supporting the end-to-end provisioning of e-homecare services.安全且用户友好的中介平台的设计与实现,支持端到端的电子家庭护理服务供应。
J Telemed Telecare. 2010;16(1):42-7. doi: 10.1258/jtt.2009.001011.
5
An analysis of personal medical information disclosed in YouTube videos created by patients with multiple sclerosis.对多发性硬化症患者创作的YouTube视频中披露的个人医疗信息的分析。
Stud Health Technol Inform. 2009;150:292-6.
6
Is a patient portal on your IT list?患者门户网站在你们的信息技术清单上吗?
Healthc Financ Manage. 2009 Feb;63(2):84, 86.
7
Why patients go online: multiple sclerosis, the internet, and physician-patient communication.患者上网的原因:多发性硬化症、互联网与医患沟通
Neurologist. 2008 Nov;14(6):374-81. doi: 10.1097/NRL.0b013e31817709bb.
8
Early experiences with personal health records.个人健康记录的早期经历。
J Am Med Inform Assoc. 2008 Jan-Feb;15(1):1-7. doi: 10.1197/jamia.M2562. Epub 2007 Oct 18.
9
The neurogenic bladder in multiple sclerosis: review of the literature and proposal of management guidelines.多发性硬化症中的神经源性膀胱:文献综述及管理指南建议
Mult Scler. 2007 Aug;13(7):915-28. doi: 10.1177/1352458506075651. Epub 2007 Mar 15.
10
One size does not fit all: using qualitative methods to inform the development of an Internet portal for multiple sclerosis patients.一刀切并不适用于所有情况:运用定性方法为多发性硬化症患者开发互联网门户网站提供依据。
AMIA Annu Symp Proc. 2005;2005:16-20.

互联网门户在学术多发性硬化症中心的使用。

Internet portal use in an academic multiple sclerosis center.

机构信息

Department of Neurology, Section of Demyelinating Diseases, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, Massachusetts, USA.

出版信息

J Am Med Inform Assoc. 2012 Jan-Feb;19(1):128-33. doi: 10.1136/amiajnl-2011-000177. Epub 2011 May 12.

DOI:10.1136/amiajnl-2011-000177
PMID:21571744
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3240754/
Abstract

OBJECTIVE

To evaluate the use of a secure internet portal in an academic Multiple Sclerosis (MS) Center.

MATERIALS AND METHODS

Retrospective case-control chart review of 240 patients during the years 2008 and 2009. Patient demographic and clinical information was extracted from our online medical records, and portal use metrics were provided by Information Systems. Descriptive statistics were utilized to explore characteristics of portal users, how the portal is used, and what associations exist between medical resource utilization and active portal use. Logistic regression identified independent patient predictors and barriers to portal use.

RESULTS

Portal users tended to be young professionals with minimal physical disability. The most frequently used portal feature was secure patient-physician messaging. Message content largely consisted of requests for medications or refills in addition to self-reported side effects. Independent predictors and barriers of portal use include the number of medications prescribed by our staff (OR 1.69, p<0.0001), Caucasian ethnicity (OR 5.04, p=0.007), arm and hand disability (OR 0.23, p=0.01), and impaired vision (OR 0.31, p=0.01). Discussion MS patients use the internet in a greater proportion than the general US population, yet physical disability limits their access. Technological adaptations such as voice-activated commands and easy font-size adjustment may help patients overcome these barriers.

CONCLUSION

Future research should explore the influence of portal technology on healthcare resource utilization and cost. Additional emedicine applications could be linked to the patient portal for disease monitoring and prospective investigation.

摘要

目的

评估在学术性多发性硬化症(MS)中心使用安全互联网门户的情况。

材料与方法

对 2008 年和 2009 年期间的 240 名患者进行回顾性病例对照图表回顾。从我们的在线病历中提取患者的人口统计学和临床信息,信息系统提供门户使用指标。利用描述性统计方法探讨门户使用者的特征、门户的使用方式,以及医疗资源利用与主动门户使用之间存在的关联。逻辑回归确定了独立的患者预测因素和使用门户的障碍。

结果

门户使用者倾向于年轻的专业人员,身体残疾程度最小。最常使用的门户功能是安全的医患消息传递。消息内容主要包括请求开处方或续方,以及自我报告的副作用。门户使用的独立预测因素和障碍包括我们的工作人员开的药物数量(OR 1.69,p<0.0001)、白种人种族(OR 5.04,p=0.007)、手臂和手部残疾(OR 0.23,p=0.01)和视力障碍(OR 0.31,p=0.01)。

讨论

多发性硬化症患者比一般美国人口更多地使用互联网,但身体残疾限制了他们的访问。技术适应,如语音激活命令和易于调整字体大小,可能有助于患者克服这些障碍。

结论

未来的研究应该探索门户技术对医疗资源利用和成本的影响。可以将其他电子医学应用程序链接到患者门户,以进行疾病监测和前瞻性研究。