Department of Family Nursing, Division of Health Science and Nursing, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan.
Nurs Health Sci. 2011 Jun;13(2):170-7. doi: 10.1111/j.1442-2018.2011.00595.x. Epub 2011 May 19.
When children are unable to assess their own health-related quality of life (HRQOL), their parents can provide useful proxy information; however, minimal agreement between the two groups on this issue has been reported in some situations. In order to clarify the degree of accordance between the self-reports of children and the proxy reports of their parents on the former's HRQOL, 679 parent-child dyads, as grouped by their depressive status, were assessed by the Pediatric Quality of Life Inventory (PedsQL). It was found that the self-reporting of the children differed significantly between those who were healthy and those who had depressive symptoms, whereas the proxy-reporting of the parents did not vary with their child's mental condition. However, the latter's reports did reveal notable dissimilarities between the healthy parents and those with depressive symptoms. The results indicated that the parents' perception of their child's HRQOL differed with their child's own perception and that the parents' perceptions were affected by their mental condition. Medical providers should assess both the child's and the parents' evaluations of the child's HRQOL, as the views of the parents could determine the use of health services and the making of decisions in clinical settings.
当儿童无法评估自己的健康相关生活质量（HRQOL）时，他们的父母可以提供有用的代理信息；然而，在某些情况下，已经报道了这两个群体在这个问题上的最小一致性。为了阐明儿童的自我报告与其父母的代理报告在前者的 HRQOL 上的一致性程度，679 对父母-子女对子，根据其抑郁状况进行了儿科生活质量量表（PedsQL）评估。结果发现，健康儿童和有抑郁症状的儿童的自我报告有显著差异，而父母的代理报告则不受其子女心理状况的影响。然而，后者的报告确实显示了健康父母和有抑郁症状父母之间的明显差异。结果表明，父母对子女 HRQOL 的看法与子女自己的看法不同，父母的看法受到其心理状况的影响。医疗提供者应该评估儿童和父母对儿童 HRQOL 的评估，因为父母的观点可能会决定在临床环境中使用卫生服务和做出决策。
