Radicke Alina, Barkmann Claus, Adema Bonnie, Daubmann Anne, Wegscheider Karl, Wiegand-Grefe Silke
Department of Child and Adolescent Psychiatry, Psychotherapy and Psychosomatics, University Medical Center Hamburg-Eppendorf, 20251 Hamburg, Germany.
Department of Medical Biometry and Epidemiology, University Medical Center Hamburg-Eppendorf, 20251 Hamburg, Germany.
Int J Environ Res Public Health. 2021 Jan 6;18(2):379. doi: 10.3390/ijerph18020379.
(1) Background: Health-related quality of life (HRQoL) is frequently reduced in children of parents with a mental illness (COPMI). Child self- and parent proxy-ratings vary with raters' characteristics and facets of HRQoL. This study aimed at analyzing risk and protective factors associated with HRQoL in COPMI, and at examining the magnitude, direction, and predictors of child-parent agreement. (2) Methods: Analyses were based on baseline data of the German CHIMPS (children of parents with a mental illness) project with = 134 parents diagnosed with mental illness and = 198 children and adolescents aged 8 to 18 years. (3) Results: Both children and parents reported significantly lower HRQoL than the reference population, particularly for the child's physical and psychological well-being. Parents' proxy-report indicated a lower HRQoL than the children's self-report. Child and parental psychopathology, social support, and the child's age significantly predicted HRQoL. Interrater agreement was satisfactory and better for observable aspects like physical well-being and school environment. The child's gender-identity and mental health significantly predicted child-parent agreement. (4) Conclusions: Parental psychopathology significantly reduces children's HRQoL. Interventions should promote resilience in children by targeting risk and protective factors. Child-parent agreement emphasizes the need to obtain both self- and proxy-reports, whenever possible.
(1) 背景：患有精神疾病的父母的子女（COPMI）的健康相关生活质量（HRQoL）常常降低。儿童的自评和父母的代理评分为随评分者特征和HRQoL的方面而变化。本研究旨在分析与COPMI的HRQoL相关的风险和保护因素，并检验儿童与父母评分一致性的程度、方向和预测因素。(2) 方法：分析基于德国CHIMPS（患有精神疾病的父母的子女）项目的基线数据，该项目有134名被诊断患有精神疾病的父母以及198名8至18岁的儿童和青少年。(3) 结果：儿童和父母报告的HRQoL均显著低于参照人群，尤其是在儿童的身心健康方面。父母的代理报告显示的HRQoL低于儿童的自评报告。儿童和父母的精神病理学、社会支持以及儿童的年龄显著预测了HRQoL。评分者间的一致性令人满意，在身体健康和学校环境等可观察方面更好。儿童的性别认同和心理健康显著预测了儿童与父母的评分一致性。(4) 结论：父母的精神病理学显著降低了儿童的HRQoL。干预措施应通过针对风险和保护因素来增强儿童的恢复力。儿童与父母的评分一致性强调了尽可能同时获取自评和代理报告的必要性。
