Division of Radiation Oncology, Department of Surgery, Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.
J Cancer Surviv. 2011 Dec;5(4):337-44. doi: 10.1007/s11764-011-0185-7. Epub 2011 Jun 4.
Survivors of breast cancer (SBC) constitute the largest population of cancer survivors. Needs for survivorship care may vary according to life stage and urban/rural place of residence. This study was conducted to better understand patient preferences for survivorship care plans (SCP).
Patients were identified through cancer agency electronic records and invited to participate by mail. Sessions were stratified by age and rural/urban place of residence. Participants were asked about preferences for content and format of SCP. Focus groups were conducted using a semi-structured format with interviews being taped, transcribed, cross-checked for accuracy, and analyzed independently, using constant comparative methods.
Preferred SCP key elements included treatment summary, information on nutrition/exercise, expected side effects, signs and symptoms of recurrence, recommended follow-up schedule, information sent to primary care physician, and updates on changes. SBC emphasized preference for individualized content depending upon physical and psychosocial effects. No difference was observed between preferred SCP content among patients residing in urban/rural areas. Rural participants preferred electronic formats for ongoing information bulletins and communication with health care providers.
DISCUSSION/CONCLUSIONS: SBC from all age groups identify common preferences for key SCP elements with individualized content reflecting the wide variation observed among physical and psychosocial effects of breast cancer. Patterns of key psychological, social, and physical effects observed at different life stages may help SCP customization.
Results provide direction for designing key content and format of SCP and also provide information about elements of care planning that should be customized to individual patient needs.
乳腺癌幸存者（SBC）构成了最大的癌症幸存者群体。生存护理的需求可能因生活阶段和城乡居住地点而异。本研究旨在更好地了解患者对生存护理计划（SCP）的偏好。
通过癌症机构的电子记录确定患者，并通过邮件邀请他们参加。根据年龄和城乡居住地点对会议进行分层。要求参与者对 SCP 的内容和格式提出偏好。使用半结构化格式进行焦点小组讨论，对访谈进行录音、转录、交叉检查准确性，并使用恒定性比较方法进行独立分析。
首选 SCP 的关键要素包括治疗总结、营养/运动信息、预期副作用、复发迹象和症状、推荐的随访计划、发送给初级保健医生的信息以及变更更新。SBC 强调根据身体和心理社会影响选择个性化内容。城乡地区患者对 SCP 内容的偏好没有差异。农村参与者更喜欢电子格式的持续信息公告和与医疗保健提供者的沟通。
讨论/结论：来自所有年龄组的 SBC 都确定了对 SCP 关键要素的共同偏好，个性化内容反映了乳腺癌身体和心理社会影响的广泛差异。在不同生命阶段观察到的关键心理、社会和身体影响模式可能有助于 SCP 的定制。
研究结果为设计 SCP 的关键内容和格式提供了方向，并提供了有关应根据患者个体需求定制护理计划要素的信息。
