CF Centre, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Milano, Italy.
J Cyst Fibros. 2011 Jun;10 Suppl 2:S45-52. doi: 10.1016/S1569-1993(11)60008-8.
Managing CF can be emotionally and physically challenging for patients and their relatives. The disease and its treatment influence the ability to tackle normal tasks of daily living and unexpected life events. The context within which psychologists work varies according to different cultural backgrounds and their professional and theoretical memberships. The benchmarks presented here focus on four crucial issues: (i) identifying a common base of tools and theoretical reflections through suggested readings, (ii) interdisciplinary work within a CF team and its importance for both persons with CF and other healthcare professionals, (iii) the benefits of an eclectic approach utilising cognitive-behavioural theories for specific psychological problems and, (iv) effective and evaluated transition programmes from paediatric to adult healthcare services.
管理 CF 可能会对患者及其亲属带来身体和情感上的挑战。该疾病及其治疗会影响他们应对日常生活正常任务和意外生活事件的能力。心理学家的工作背景因文化背景以及专业和理论隶属关系的不同而有所不同。这里提出的基准侧重于四个关键问题:(i)通过推荐阅读来确定共同的工具和理论反思基础,(ii)在 CF 团队内进行跨学科工作及其对 CF 患者和其他医疗保健专业人员的重要性,(iii)利用认知行为理论针对特定心理问题采取折衷方法的好处,以及(iv)从儿科到成人医疗保健服务的有效且经过评估的过渡计划。