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肿瘤坏死因子治疗类风湿关节炎患者的工作参与经验和需求。

Experiences and needs for work participation in employees with rheumatoid arthritis treated with anti-tumour necrosis factor therapy.

机构信息

Coronel Institute of Occupational Health, Academic Medical Center, University of Amsterdam, 1100 DE Amsterdam, The Netherlands.

出版信息

Disabil Rehabil. 2011;33(25-26):2587-95. doi: 10.3109/09638288.2011.582923. Epub 2011 Jun 15.

Abstract

PURPOSE

To investigate the experiences and needs with respect to work participation of employees with rheumatoid arthritis (RA) treated with anti-tumour necrosis factor (TNF) therapy.

METHOD

Face-to-face interviews in 14 employees with RA on anti-TNF therapy focused on experiences, offered support and needs with respect to work participation.

RESULTS

Experiences regarding work participation varied and ranged from fatigue at work, having no job control, not being understood by the work environment or difficulty dealing with emotions as a result of interaction within the work environment. Support by health care professionals for work participation was considered important, especially concerning social or psychological issues. Advice in becoming aware of one's changes in abilities was highly appreciated, as was the availability of professional advice in times of an urgent work issue due to RA. Employees mentioned an increase in social support at work and job control as important facilitating factors for work participation.

CONCLUSION

Although patients with RA report improvement in their work functioning after starting anti-TNF therapy, employees continue facing challenges in working life due to RA. For support concerning work participation, it is recommended that health care professionals are more aware of work-related problems in patients with RA treated with anti-TNF therapy.

摘要

目的

调查接受肿瘤坏死因子(TNF)拮抗剂治疗的类风湿关节炎(RA)患者的工作参与体验和需求。

方法

对 14 名接受 TNF 拮抗剂治疗的 RA 患者进行面对面访谈,重点关注工作参与的体验、提供的支持以及需求。

结果

工作参与体验各不相同,包括工作时疲劳、缺乏工作控制、工作环境不理解或因工作环境中的互动而难以应对情绪等。医疗保健专业人员提供的工作参与支持被认为很重要,特别是在涉及社会或心理问题时。意识到自身能力变化的建议受到高度赞赏,在因 RA 而出现紧急工作问题时,获得专业建议也很重要。员工提到增加工作中的社会支持和工作控制是促进工作参与的重要因素。

结论

尽管接受 TNF 拮抗剂治疗后 RA 患者的工作功能有所改善,但由于 RA,员工在工作生活中仍面临挑战。为了支持工作参与,建议医疗保健专业人员更加关注接受 TNF 拮抗剂治疗的 RA 患者的工作相关问题。

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