Lundberg Mari, Hagberg Kerstin, Bullington Jennifer
Department of Orthopaedics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Prosthet Orthot Int. 2011 Jun;35(2):207-14. doi: 10.1177/0309364611409795.
Bone-anchored prosthesis is still a rather unusual treatment for patients with limb loss.
The aim of this study was to improve our understanding about the experience of living with an osseointegrated prosthesis (OI-prosthesis) compared to one suspended with a socket, through the use of qualitative research methodology.
A qualitative phenomenological research method.
Thirteen Swedish patients (37-67 years) with unilateral upper or lower limb amputation (10 transfemoral, 2 transhumeral, 1 transradial), who had been using OI-prostheses for 3 to 15 years, were recruited by means of purposive sampling. An audio-taped in-depth interview was performed. The guiding question was 'How do you experience living with your osseointegrated prosthesis compared to your earlier prostheses suspended with sockets?'. The empirical phenomenological psychological method was used for data analysis.
The results showed that all participants described living with an OI-prosthesis as a revolutionary change. These experiences were described in terms of three typologies, called 'Practical prosthesis', 'Pretend limb' and 'A part of me'.
The most important finding was that the change went beyond the functional improvements, integrating the existential implications in the concept of quality of life.
This qualitative in-depth interview study on patients using bone-anchored prosthetic limbs showed that all described a revolutionary change in their lives as amputees and the meaning of that change went beyond the functional improvements, integrating existential implications in the concept of quality of life.
骨锚式假体对于肢体缺失患者而言仍是一种相当不常见的治疗方式。
本研究旨在通过运用定性研究方法，增进我们对与骨整合式假体（OI 假体）相比使用套接悬吊式假体的生活体验的理解。
一种定性现象学研究方法。
通过目的抽样法招募了 13 名瑞典患者（年龄 37 - 67 岁），他们单侧上肢或下肢截肢（10 例经股骨截肢、2 例经肱骨截肢、1 例经桡骨截肢），且已使用 OI 假体 3 至 15 年。进行了一次录音深度访谈。指导性问题为“与你早期使用的套接悬吊式假体相比，你如何体验使用骨整合式假体的生活？”。采用实证现象学心理学方法进行数据分析。
结果显示，所有参与者均将使用 OI 假体的生活描述为一种革命性的变化。这些体验从三种类型进行了描述，分别称为“实用假体”“假肢体”和“我的一部分”。
最重要的发现是，这种变化不仅局限于功能改善，还将生存意义融入了生活质量概念之中。
这项关于使用骨锚式假肢患者的定性深度访谈研究表明，所有患者均描述了作为截肢者他们生活中的革命性变化，且这种变化的意义不仅在于功能改善，还将生存意义融入了生活质量概念之中。
