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从照顾者到被照顾者:适应脊髓损伤的经历,一项案例研究。

From Being Caregiver to Being Cared for: The Experience of Adapting to Spinal Cord Injury, a Case Study.

作者信息

Fernández-Moya Monserrat, Ortega-Jiménez Marcela, Moreno-Fergusson María Elisa

机构信息

Life Sciences Division, Nursing and Obstetrics Department, Campus Irapuato-Salamanca, University of Guanajuato, Guanajuato 38140, Mexico.

Nursing and Obstetrics Department, Celaya-Salvatierra Campus, University of Guanajuato, Guanajuato 38140, Mexico.

出版信息

Nurs Rep. 2022 Aug 5;12(3):556-563. doi: 10.3390/nursrep12030054.

DOI:10.3390/nursrep12030054
PMID:35997462
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9396994/
Abstract

This narrative case study portrays a young woman's life experience and adjustment process after suffering a traumatic spinal cord injury (SCI) 5 years ago. It is analyzed retrospectively from the perspective of the middle-range theory (MRT) of adapting to chronic health conditions by Buckner and Hayden (2014), and Ricoeur's narrative philosophy is expanded. Understanding Alice's narrative from this perspective allows us to understand the process of adaptation to a condition of disability due to a spinal cord injury, from the perspective of a nurse who was forced to change her role as a caregiver to a role of being cared for, due to the changes in her body and her corporality due to the consequences of the injury. In this narrative, the focal and contextual stimuli, the coping processes with special emphasis on the intrinsic and extrinsic adaptive processes, and the results of the process are identified.

摘要

本叙述性案例研究描绘了一名年轻女性在5年前遭受创伤性脊髓损伤(SCI)后的生活经历和调整过程。它从巴克纳和海登(2014年)适应慢性健康状况的中程理论(MRT)角度进行回顾性分析,并拓展了利科的叙事哲学。从这个角度理解爱丽丝的叙事,能让我们从一名护士的视角,了解因脊髓损伤导致身体及身体状况变化,从而被迫从照顾者角色转变为被照顾者角色后,适应残疾状况的过程。在这个叙事中,确定了焦点和背景刺激、特别强调内在和外在适应过程的应对过程以及该过程的结果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/169c/9396994/19f81ced6fc3/nursrep-12-00054-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/169c/9396994/19f81ced6fc3/nursrep-12-00054-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/169c/9396994/19f81ced6fc3/nursrep-12-00054-g001.jpg

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本文引用的文献

1
[Narrative as a strategy for understanding the experience of chronic illness: a literature review].[将叙事作为理解慢性病经历的一种策略:文献综述]
Cien Saude Colet. 2020 Aug 5;25(8):3261-3272. doi: 10.1590/1413-81232020258.24902018.
2
Ricoeur's narrative philosophy: A source of inspiration in critical hermeneutic health research.里科尔的叙事哲学:批判解释学健康研究的灵感源泉。
Nurs Philos. 2020 Apr;21(2):e12254. doi: 10.1111/nup.12254. Epub 2019 May 14.
3
Anxiety and Depression in Patients with Traumatic Spinal Cord Injury: A Nationwide Population-Based Cohort Study.
创伤性脊髓损伤患者的焦虑与抑郁:一项基于全国人口的队列研究。
PLoS One. 2017 Jan 12;12(1):e0169623. doi: 10.1371/journal.pone.0169623. eCollection 2017.
4
Narrative interviewing.叙事访谈
Int J Clin Pharm. 2016 Jun;38(3):631-4. doi: 10.1007/s11096-015-0222-0.
5
Ruptures and sutures: time, audience and identity in an illness narrative.破裂与缝合:疾病叙事中的时间、受众与身份
Sociol Health Illn. 2015 Sep;37(7):1055-71. doi: 10.1111/1467-9566.12281. Epub 2015 Apr 29.
6
[The narrative in qualitative research in health].[健康领域质性研究中的叙事]
Cien Saude Colet. 2014 Apr;19(4):1065-76. doi: 10.1590/1413-81232014194.12052013.
7
Difficulties adjusting to post-discharge life following a spinal cord injury: an interpretative phenomenological analysis.脊髓损伤后出院后生活适应困难:诠释现象学分析。
Psychol Health Med. 2011 Aug;16(4):463-74. doi: 10.1080/13548506.2011.555769.
8
Review paper: epidemiology of traumatic spinal cord injury: comparisons between developed and developing countries.综述论文:外伤性脊髓损伤的流行病学:发达国家与发展中国家的比较。
Asia Pac J Public Health. 2010 Jan;22(1):9-18. doi: 10.1177/1010539509355470.