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意大利撒丁岛阿尔茨海默病患者照顾者的生活质量体验。

The experience of quality of life for caregivers of people with Alzheimer's disease living in Sardinia, Italy.

机构信息

School of Nursing, University of Rome "Tor Vergata," Rome, Italy.

出版信息

J Transcult Nurs. 2012 Jan;23(1):46-55. doi: 10.1177/1043659611414199. Epub 2011 Aug 1.

DOI:10.1177/1043659611414199
PMID:21807960
Abstract

PURPOSE

This study explored the meaning of quality of life (QOL) for Sardinian caregivers of people affected with Alzheimer's disease and factors improving and worsening their QOL.

DESIGN

The phenomenological method was used to study 41 Alzheimer's disease caregivers living on the western coast of Sardinia, Italy. Interviews were conducted and analyzed using Cohen, Kahn, and Steeves's approach.

FINDINGS

Extracted themes were the following: unity and cooperation in the family; freedom/independence; having time for themselves; serenity/tranquility; and well-being and health. Caregivers identified factors that they believed worsened or improved their QOL. Family was particularly important for these caregivers.

DISCUSSION

This study reinforces previous research about cultural influence on QOL and emphasizes the importance of nurses being culturally sensitive. Since Sardinia is a rural region, these findings may be useful for nurses working with caregivers in other rural settings.

摘要

目的

本研究旨在探讨撒丁岛阿尔茨海默病患者照顾者生活质量(QOL)的含义,以及改善和恶化其 QOL 的因素。

设计

采用现象学方法,对意大利撒丁岛西海岸的 41 名阿尔茨海默病照顾者进行研究。采用科恩、卡恩和斯蒂夫斯的方法进行访谈和分析。

结果

提取的主题如下:家庭的团结与合作;自由/独立;有自己的时间;宁静/平静;幸福与健康。照顾者确定了他们认为会恶化或改善他们的 QOL 的因素。家庭对这些照顾者尤为重要。

讨论

本研究强化了关于文化对 QOL 影响的先前研究,并强调了护士具有文化敏感性的重要性。由于撒丁岛是一个农村地区,这些发现可能对在其他农村环境中与照顾者一起工作的护士有用。

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