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农村地区成年炎症性肠病患者的生活体验:现象学研究

The Lived Experience of Adults With Inflammatory Bowel Disease in Rural Areas: Phenomenological Study.

作者信息

Bosco Vincenzo, Mercuri Caterina, Doldo Patrizia, Nocerino Rita, Guillari Assunta, Virgolesi Michele, Rea Teresa, Giordano Vincenza, Simeone Silvio

机构信息

Department of Medical and Surgical Sciences, University Hospital Mater Domini, Magna Graecia University, Catanzaro, Italy.

Department of Clinical and Experimental Medicine, University of Catanzaro Magna Graecia, Catanzaro, Italy.

出版信息

Nurs Health Sci. 2025 Mar;27(1):e70058. doi: 10.1111/nhs.70058.

Abstract

Inflammatory bowel disease (IBD), including Crohn's disease and ulcerative colitis, is a chronic gastrointestinal condition with a multifactorial etiology. It significantly impacts patients' quality of life, particularly, in rural areas where access to specialized care is limited. Challenges such as increased travel costs, social isolation, and restricted healthcare access are recognized, but their specific impact on rural Italian patients remains underexplored. This study aims to fill this gap. Using Cohen's hermeneutic phenomenological approach, in-depth interviews were conducted with 17 IBD patients from rural areas. Thematic analysis identified key patterns and themes. Two main themes emerged: "challenges of rural living," including economic concerns and social isolation, and "communication that bridges distances." Rural IBD patients face unique challenges extending beyond disease management, with economic hardship and social isolation being prominent. These findings highlight the need for tailored interventions to bridge healthcare gaps and improve the quality of life for rural patients, offering novel insights into their lived experiences in Italy.

摘要

炎症性肠病(IBD),包括克罗恩病和溃疡性结肠炎,是一种病因多因素的慢性胃肠道疾病。它对患者的生活质量有重大影响,尤其是在获得专科护理有限的农村地区。诸如旅行成本增加、社会隔离和医疗保健受限等挑战是公认的,但它们对意大利农村患者的具体影响仍未得到充分探索。本研究旨在填补这一空白。采用科恩的诠释现象学方法,对17名来自农村地区的IBD患者进行了深入访谈。主题分析确定了关键模式和主题。出现了两个主要主题:“农村生活的挑战”,包括经济问题和社会隔离,以及“跨越距离的沟通”。农村IBD患者面临着超越疾病管理的独特挑战,经济困难和社会隔离最为突出。这些发现凸显了需要采取针对性干预措施来弥合医疗差距并改善农村患者的生活质量,为他们在意大利的生活经历提供了新的见解。

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