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系统性红斑狼疮患者的社会支持与健康:文献综述。

Social support and health in patients with systemic lupus erythematosus: a literature review.

机构信息

Department of Education Sciences, University of Bologna, Italy.

出版信息

Lupus. 2011 Oct;20(11):1117-25. doi: 10.1177/0961203311412994. Epub 2011 Aug 9.

DOI:10.1177/0961203311412994
PMID:21828159
Abstract

In the last decades, with the improvement of life expectancies for systemic lupus erythematosus (SLE) patients, the relationship between social support and health in this population has received a considerable amount of attention in behavioural medicine and health psychology. This paper is the first to review research studies which specifically investigated perceived social support in relation to SLE patients' health outcomes (quality of life, disease activity and damage). Starting with a descriptive approach to social support perceived by patients with SLE, the research evidence on the impact of social support on health is presented. These studies demonstrate that the consideration of social support is critical in predicting disease activity, damage and quality of life (both physical and psychological components) although the precise ways in which social support contributes to health are not yet completely understood. Discussing the results, the authors offer some suggestions which could guide further research in this field. Finally, clinical and non-clinical implications of the findings are discussed.

摘要

在过去几十年中,随着系统性红斑狼疮 (SLE) 患者预期寿命的提高,行为医学和健康心理学领域对该人群中社会支持与健康之间的关系给予了相当多的关注。本文首次综述了专门研究 SLE 患者健康结果(生活质量、疾病活动度和损伤)与感知社会支持关系的研究。本文从描述性方法入手,探讨了 SLE 患者感知到的社会支持,展示了社会支持对健康的影响的研究证据。这些研究表明,考虑社会支持对于预测疾病活动度、损伤和生活质量(身体和心理成分)至关重要,尽管社会支持促进健康的确切方式尚不完全清楚。在讨论结果时,作者提出了一些建议,这些建议可以为该领域的进一步研究提供指导。最后,还讨论了这些发现的临床和非临床意义。

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