Burckhardt C S, Archenholtz B, Bjelle A
Department of Rheumatology, Sahlgren University Hospital, Gothenburg, Sweden.
J Rheumatol. 1993 Jun;20(6):977-81.
We assessed the quality of life and health status of 50 women with systemic lupus erythematosus (SLE) and compared them with 50 age matched women with rheumatoid arthritis (RA) using open ended questions, the Quality of Life Scale (QOLS-S), Arthritis Impact Measurement Scales (AIMS), Rheumatology Attitudes Index, and 2 measures of disease activity. The patients with SLE expressed more concerns about their disease and potential for managing it than the patients with RA. However, there were no differences between the groups on the QOLS-S. Both were highly satisfied with many aspects of their lives. The best predictor of life quality in both groups was psychological distress followed by social and physical functioning in the group with RA and perception of global impact of the disease in the group with SLE.
我们评估了50名系统性红斑狼疮（SLE）女性患者的生活质量和健康状况，并使用开放式问题、生活质量量表（QOLS-S）、关节炎影响测量量表（AIMS）、风湿病态度指数以及两种疾病活动度测量方法，将她们与50名年龄匹配的类风湿关节炎（RA）女性患者进行了比较。与RA患者相比，SLE患者对自身疾病及其管理可能性表现出更多担忧。然而，两组在QOLS-S上并无差异。两组患者对生活的许多方面都非常满意。两组生活质量的最佳预测因素在RA组是心理困扰，其次是社会和身体功能；在SLE组则是对疾病整体影响的认知。
