Royal Brompton & Harefield NHS Foundation Trust, London, UK.
J Adv Nurs. 2012 May;68(5):1050-60. doi: 10.1111/j.1365-2648.2011.05809.x. Epub 2011 Aug 16.
This article is a report of a study exploring health-related quality of life in adults with congenital heart disease and the extent to which it is associated with patients' illness beliefs and emotional health.
A reduction in mortality in patients with congenital heart disease has led to an increasingly older population that faces new challenges. Studies in a younger adult population have reported inconsistent findings regarding health-related quality of life. Factors such as, the complexity of the congenital heart defect, have not been found to be associated with quality of life. The association between illness beliefs and health-related quality of life has not previously been reported.
A cross-sectional questionnaire study of adults with congenital heart disease attending an outpatient clinic in a specialist centre in the United Kingdom between October 2007 and May 2008.
The mean age of the study population was 37·2 years. Participants reported poorer physical functioning, role functioning and general health than a general population. High levels of anxiety were reported in 38% and high levels of depression in 17%. In multivariate analysis, higher levels of anxiety and depression were associated with poorer mental functioning and higher levels of depression with poorer physical quality of life.
We have reported that high levels of anxiety and depression in an older population of patients with congenital heart disease are associated with poorer quality of life. This highlights the need to routinely assess anxiety and depression in this patient group and to provide psychological support appropriately.
本文是一项研究报告，旨在探讨成人先天性心脏病患者的健康相关生活质量及其与患者疾病信念和情绪健康的关联程度。
先天性心脏病患者的死亡率降低导致患者群体年龄逐渐增大，他们面临着新的挑战。在年轻成年患者群体中进行的研究报告了健康相关生活质量的不一致发现。诸如先天性心脏缺陷的复杂性等因素与生活质量并无关联。疾病信念与健康相关生活质量之间的关联尚未有报道。
这是一项在英国一家专门中心的门诊诊所中对成年先天性心脏病患者进行的横断面问卷调查研究，时间为 2007 年 10 月至 2008 年 5 月。
研究人群的平均年龄为 37.2 岁。参与者报告的身体机能、角色功能和总体健康状况均差于一般人群。38%的参与者报告存在较高水平的焦虑，17%的参与者报告存在较高水平的抑郁。在多变量分析中，较高水平的焦虑和抑郁与较差的心理功能有关，而较高水平的抑郁与较差的身体生活质量有关。
我们报告称，在年龄较大的先天性心脏病患者群体中，较高水平的焦虑和抑郁与较差的生活质量有关。这凸显了在该患者群体中常规评估焦虑和抑郁并提供适当的心理支持的必要性。
