Department of Psychiatry, Postgraduate Institute of Medical Education & Research, Chandigarh, India.
Psychiatry Clin Neurosci. 2011 Aug;65(5):416-22. doi: 10.1111/j.1440-1819.2011.02240.x.
The study aimed to examine the family burden and quality of life (QOL) of caregivers of patients with obsessive-compulsive disorder (OCD).
A cross-sectional assessment of 50 patients with OCD and their caregivers was carried out. The severity of OCD was assessed using the Yale-Brown Obsessive Compulsive Scale. The caregivers were assessed using the Family Burden Interview Schedule and the World Health Organization Quality of Life BREF version (WHOQOL-BREF).
Fifty-six percent of caregivers reported a high objective burden. Severity of illness correlated with burden and impaired QOL of caregivers. Age of patient, longer duration of illness and longer duration of treatment were predictive of poorer QOL of caregivers in the physical health domain. Greater objective burden, disruption of family leisure and interaction due to OCD led to significantly poorer QOL in all domains in caregivers. Higher financial burden, perception of poorer mental health, and higher subjective burden were predictive of poorer physical, general health and general and psychological QOL, respectively.
The study provides important insights into the QOL and perceived burden of caregivers of OCD patients. It highlights the need for improving the quality of care not only for patients but also for primary caregivers.
本研究旨在探讨强迫症(OCD)患者照顾者的家庭负担和生活质量(QOL)。
对 50 名 OCD 患者及其照顾者进行了横断面评估。使用耶鲁-布朗强迫量表评估 OCD 的严重程度。使用家庭负担访谈表和世界卫生组织生活质量简表(WHOQOL-BREF)评估照顾者。
56%的照顾者报告存在较高的客观负担。疾病严重程度与照顾者的负担和生活质量受损相关。患者年龄、病程和治疗时间与照顾者的生理健康领域 QOL 较差有关。由于 OCD 导致的客观负担增加、家庭休闲和互动中断,导致照顾者在所有领域的 QOL 明显下降。较高的经济负担、较差的心理健康感知以及较高的主观负担分别与较差的生理、一般健康以及一般和心理 QOL 相关。
本研究提供了关于 OCD 患者照顾者的 QOL 和感知负担的重要见解。它强调了不仅需要改善患者的护理质量,还需要改善主要照顾者的护理质量。