Grover Sandeep, Mehra Aseem, Dogra Sunil, Hazari Nandita, Malhora Nidhi, Narang Tarun, Sahoo Swapanjeet, Sharma Sunil, Handa Sanjeev, Avasthi Ajit
Department of Psychiatry, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Department of Dermatology, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Indian Dermatol Online J. 2021 Jan 16;12(1):110-115. doi: 10.4103/idoj.IDOJ_358_20. eCollection 2021 Jan-Feb.
Psoriasis is a chronic inflammatory dermatosis associated with psychological morbidity. Very few studies have evaluated stigma among caregivers of patients with psoriasis.
This study aimed to evaluate the prevalence of stigma and its correlates among the caregivers of patients with psoriasis.
Forty-nine caregivers of patients with psoriasis were evaluated on psoriasis adapted version of caregiver of people with mental illness (CPMI) to assess internalized stigma, Explanatory Model Interview Catalogue Stigma Scale, Family Burden Inventory (FBI), Multidimensional aspect of perceived social support scale (PSS), Cognitive behavioral avoidance scale (CBAS), and Coping checklist.
Majority of the caregivers were either spouse (42.8%) or parents (36.7%) of the patients. The caregivers were involved in the care of the patients for a mean duration of 6.5(SD; 4.8) years. On CPMI, the mean score was highest for the affective domain (3.1), this was followed by affective (2.9), and behavioral (2.9) domain. Very few (12.2%) caregivers reported significantly high caregiver burden. A higher level of stigma was associated with more often use of avoidance coping. Presence of higher social support was associated with higher level of stigma as assessed by using CPMI. A higher level of caregiver burden in all the domains of FBI was associated with higher level of stigma.
Stigma is highly prevalent among the caregivers of patients with psoriasis. These findings suggest that there is an urgent need to identify the stigma and address the same.
银屑病是一种与心理疾病相关的慢性炎症性皮肤病。很少有研究评估银屑病患者照料者中的污名化情况。
本研究旨在评估银屑病患者照料者中污名化的患病率及其相关因素。
对49名银屑病患者的照料者进行评估，采用精神疾病患者照料者银屑病适配版（CPMI）评估内化污名，采用解释性模型访谈目录污名量表、家庭负担量表（FBI）、感知社会支持量表（PSS）的多维方面、认知行为回避量表（CBAS）和应对清单。
大多数照料者是患者的配偶（42.8%）或父母（36.7%）。照料者参与患者护理的平均时长为6.5（标准差；4.8）年。在CPMI上，情感领域的平均得分最高（3.1），其次是情感（2.9）和行为（2.9）领域。很少（12.2%）照料者报告有显著较高的照料负担。较高水平的污名与更频繁地使用回避应对方式相关。如通过CPMI评估，较高水平的社会支持与较高水平的污名相关。FBI所有领域中较高水平的照料负担与较高水平的污名相关。
污名在银屑病患者照料者中高度普遍。这些发现表明迫切需要识别污名并加以解决。
