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慢性失语症患者的生命数量。

The quantity of life for people with chronic aphasia.

机构信息

a Universities of Exeter, UK and Sydney, Australia, and Speakability, London, UK.

出版信息

Neuropsychol Rehabil. 2003 Jul;13(3):379-90. doi: 10.1080/09602010244000255.

Abstract

This study sought to examine the relationships between social activity and aphasia. Thirty-eight people with chronic aphasia and their closest relative completed a newly developed Social Network with Aphasia Profile (SNAP) and relatives completed a Communicative Effectiveness Index (CETI) during the summer months of the year 2000. The SNAP requires a record to be kept over a consecutive seven-day period of who the person with aphasia sees (e.g., doctor, brother), where they see them (e.g., hospital, gym, pub), and why (e.g., to attend group meeting, shopping). A multiple regression analysis was carried out using the number of hours people spent out of their home as the independent variable, and severity of aphasia, age, time since onset and presence of hemiplegia as dependent variables. This accounted for 30% of the variance and revealed that severity of aphasia has a particularly negative impact. Age and physical condition also have a negative impact. However, a rich social network was observed for some aphasic people. Only one participant was receiving speech-language therapy of two hours per week. Implications for reducing communication barriers, raising public awareness and service provision are discussed.

摘要

本研究旨在探讨社会活动与失语症之间的关系。38 名慢性失语症患者及其最亲近的亲属在 2000 年夏季完成了新开发的失语症社会网络概况 (SNAP),亲属完成了交际效能指数 (CETI)。SNAP 需要在连续的七天内记录失语症患者看到的人(例如,医生,兄弟),他们在哪里看到他们(例如,医院,健身房,酒吧),以及原因(例如,参加小组会议,购物)。使用人们离开家的时间作为自变量,用失语症严重程度、年龄、发病时间和偏瘫情况作为因变量进行多元回归分析。这解释了 30%的方差,结果表明失语症的严重程度具有特别负面的影响。年龄和身体状况也有负面影响。然而,一些失语症患者的社交网络非常丰富。只有一名参与者每周接受两小时的言语治疗。讨论了减少沟通障碍、提高公众意识和提供服务的影响。

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