Alzheimer's Society (Research), London, UK.
Int J Older People Nurs. 2011 Sep;6(3):217-26. doi: 10.1111/j.1748-3743.2011.00289.x.
There are currently 25 million people with dementia worldwide, and this number is rising. Dementia has been highlighted as a major priority for health care and research because of the enormous economical and health burden associated with it. Consultations with people with dementia and carers have highlighted that timely well-targeted information services are a key priority for enabling them to 'live well with dementia'. Despite this, the evidence base for the optimal design and delivery of an information provision service is limited. Findings from randomised controlled trials and other studies have indicated that information provision does confer some benefit in carer outcomes and in the symptoms and well-being of people with dementia. However, there is limited understanding of the optimal design of such a service because of the variety of approaches that have been evaluated, the wide range of settings and locations and the lack of a clear conceptual framework. The existing evidence base supports the importance of an optimised information provision service and strongly indicates the need for a large-scale RCT to identify the most effective and cost-effective design for people with dementia and their carers.
目前全球有 2500 万人患有痴呆症,且这个数字还在不断上升。由于痴呆症给人们带来了巨大的经济和健康负担,因此它已被确定为医疗保健和研究的重点。与痴呆症患者和护理人员的磋商强调,及时提供有针对性的优质信息服务是使他们能够“与痴呆症一起过上美好生活”的关键优先事项。尽管如此,关于优化信息提供服务的最佳设计和交付的证据基础仍然有限。随机对照试验和其他研究的结果表明,信息提供确实可以改善护理人员的结果,以及痴呆症患者的症状和幸福感。然而,由于评估的方法多种多样,所处的环境和地点也各不相同,并且缺乏明确的概念框架,因此对于这种服务的最佳设计,我们的理解还很有限。现有的证据基础支持优化信息提供服务的重要性,并强烈表明需要进行大规模 RCT,以确定针对痴呆症患者及其护理人员的最有效和最具成本效益的设计。