a Clinical Psychology Department , Walton Hospital , Chesterfield , UK.
Psychol Health Med. 2003 Feb 1;8(1):19-33. doi: 10.1080/1354850021000059232.
The objective of this study was to explore women's personal experiences of living with vaginal agenesis to gain insight in to psychological, social and emotional consequences of diagnosis and treatment. It employed interpretative phenomenological analysis for an in-depth exploratory study of a small sample of women with vaginal agenesis. The verbatim transcripts of semi-structured interviews with seven women diagnosed with vaginal agenesis were used as data for an interpretative phenomenological analysis. Four themes emerged which are described under the following headings: dealing with loss, the experience of medical services, sharing with others, and the role of time. Participants struggled to understand the meaning of their diagnosis and to incorporate it in to a new sense of self. Contact with medical services generally enhanced feelings of uncertainty and isolation. Emotional distress was managed through cognitive strategies and choices about disclosure to others. Participants described how the experience of their loss recurred over time in different ways depending on the salience of their sexual and reproductive identities. Some implications for health care professionals are discussed.
本研究旨在探讨女性阴道发育不全的个人经历，以深入了解诊断和治疗对心理、社会和情感的影响。本研究采用解释性现象学分析方法，对少量阴道发育不全的女性进行深入探索性研究。对 7 名被诊断为阴道发育不全的女性进行半结构化访谈的逐字记录被用作解释性现象学分析的数据。研究结果得出 4 个主题，分别描述如下：应对损失、医疗服务体验、与他人分享、以及时间的作用。参与者努力理解自己的诊断的意义，并将其融入到新的自我意识中。与医疗服务的接触通常会增加不确定性和孤立感。通过认知策略和对向他人披露的选择来管理情绪困扰。参与者描述了他们的损失经历如何随着时间的推移以不同的方式重现，这取决于他们的性和生殖身份的显著性。还讨论了一些对医疗保健专业人员的启示。
