University Center of Lavras (UNILAVRAS), Brazil.
Nurs Ethics. 2011 Sep;18(5):694-709. doi: 10.1177/0969733011408043.
The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units (PICUs). The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs. Not unexpectedly, the concept of dignified death was found to be a complex phenomenon involving aspects related to decisions made by the multidisciplinary team as well as those related to care of the child and the family. Knowledge of the concept's dimensions can promote reflection on the part of healthcare professionals regarding the values and beliefs underlying their conduct in end-of-life situations. Our hope is that this study may contribute to theoretic and methodological development in the area of end-of-life care.
本研究旨在构建巴西儿科重症监护病房(PICU)中儿童有尊严死亡的概念。使用混合模型概念开发方法,尝试定义 PICU 中儿童有尊严死亡的概念结构。通过对 9 名护士和 7 名医生在 PICU 中的深入访谈进行实地研究。不出所料,有尊严死亡的概念被发现是一个复杂的现象,涉及多学科团队做出的决策以及与儿童和家庭护理相关的方面。对该概念维度的了解可以促使医疗保健专业人员反思其在生命末期情况下行为背后的价值观和信念。我们希望本研究能够为生命末期护理领域的理论和方法发展做出贡献。