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英国肾脏注册处第 13 份年度报告(2010 年 12 月):第 16 章:三十年来肾脏护理变化的记忆——注册处统计数据的人文视角。

UK Renal Registry 13th Annual Report (December 2010): Chapter 16: memories of changes in renal care over three decades--the human perspective on registry statistics.

机构信息

St James's University Teaching Hospital, Leeds, UK.

出版信息

Nephron Clin Pract. 2011;119 Suppl 2:c269-74. doi: 10.1159/000331784. Epub 2011 Aug 26.

Abstract

INTRODUCTION

This is a personal memory of 35 years of renal replacement therapy charting the changes in care through that time.

METHOD

The personal reminiscences were augmented by the recollections of other patients and staff from the time.

RESULTS

Major changes are charted in: the selection of patients especially children, the care of children, approaches to diet, methods of dialysis, transplant techniques and immunosuppression. Attitudes towards care and lifestyle possibilities have become more liberal for patients.

CONCLUSION

Much has changed, mainly for the better and some old ideas have come back into fashion. Long-term patients have been through very difficult experiences and might have strongly formed opinions about their treatment as a result: perhaps staff should listen to these patients and learn from their wealth of experience.

摘要

简介

这是一份个人回忆录,记录了 35 年肾脏替代治疗的历程,描绘了这段时间护理方面的变化。

方法

个人回忆辅以当时其他患者和工作人员的回忆。

结果

主要变化如下:患者选择,尤其是儿童患者的选择,儿童护理,饮食方法,透析方法,移植技术和免疫抑制。对患者护理和生活方式的态度变得更加宽松。

结论

变化很大,主要是向好的方面发展,一些旧观念又重新流行起来。长期患者经历了非常困难的时期,因此可能对他们的治疗有强烈的意见:也许工作人员应该倾听这些患者的意见,并从他们丰富的经验中学习。

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