Coudin Geneviève, Mollard Judith
Laboratoire de psychologie des menaces sociales et environnementales, Université Paris Descartes, Sorbonne Paris.
Geriatr Psychol Neuropsychiatr Vieil. 2011 Sep;9(3):363-78. doi: 10.1684/pnv.2011.0286.
Supporting family carers is likely to remain at the forefront of community care policy in dementia care for the foreseeable future. However, despite extensive research in the area, there is little evidence for the effectiveness of current interventions. Focus being placed almost exclusively on the caregivers' burden, at the expense of skills they develop and of satisfactions they experience, partly explains such an impasse. The aim of this study was to use Nolan's approach and methodology for a holistic assessment of a sample of French carers'needs (N = 74). Our study constitutes a first step toward a translation and validation of the Carers Assessment of Difficulties Index, Carers Assessment of Managing Index, and the Carers Assessment of Satisfactions Index (CADI-CAMI-CASI). It describes how carers manage the difficulties of the caring situation and what satisfactions they may find in their role. Our results should encourage larger studies aimed at validating Nolan's methodology, as well as defining and promoting professional efficient interventions as they are based on a partnership that allows caregivers to define themselves "what works" and what is gratifying.
在可预见的未来，支持家庭护理人员可能仍将处于痴呆症护理社区护理政策的前沿。然而，尽管该领域进行了广泛研究，但几乎没有证据表明当前干预措施的有效性。几乎完全将重点放在护理人员的负担上，而牺牲了他们所培养的技能和所体验到的满足感，这在一定程度上解释了这种僵局。本研究的目的是使用诺兰的方法对一组法国护理人员（N = 74）的需求进行全面评估。我们的研究是迈向《护理人员困难评估指数》《护理人员管理评估指数》和《护理人员满意度评估指数》（CADI-CAMI-CASI）的翻译和验证的第一步。它描述了护理人员如何应对护理情况中的困难以及他们在角色中可能获得的满足感。我们的研究结果应鼓励开展更大规模的研究，旨在验证诺兰的方法，并确定和推广专业有效的干预措施，因为这些措施基于一种伙伴关系，使护理人员能够自行确定“什么有效”以及什么令人满意。
